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SN children

Here are some suggested organisations that offer expert advice on special needs.

Does anyone know anything about pre-autism?

27 replies

Bluebirdonmyshoulder · 03/07/2013 17:47

Firstly I really apologise if anything I'm about to ask is controversial.

My DD has a rare chromosome disorder and I've been doing some more research about it recently. Autism is not considered a feature of her condition, however I did discover one reference to children with her condition having 'autistic tendencies' that they grew out of.

DH and I have been worried for a while about a couple of things that could be considered autistic tendencies, although we're conscious our concerns stem from a very general and limited knowledge of what constitutes autistic tendencies.

However we've discovered this website for the Parent Infant Clinic which talks about pre-autism, and going through the checklist, DD does have more than 3. I think it calls it 'pre' autism as they state that with early intervention, autism can be avoided. (Sorry if that seems too much like 'cured', I mean no offence). There also seems to be some veiled references on the site to pre-autism being due to something the parents are not doing which is ringing alarm bells for me.

My question is, is pre-autism a recognised condition and can some form of early intervention lessen its severity? Has anyone ever heard of or dealt with this clinic?

Thanks for reading.

OP posts:
StarlightMcKenzie · 02/09/2013 08:17

Ds had signs from a few days old. It wasn't pre-autism though. It was autism.

If you have a spare £29k my advice woukd be to spend a fraction of it on your own research for strategies, paying for a bit of childcare or restbite to allow this, or the odd person to help YOU implement it.

There is not fix, but a lot of good can be done with commitment and work, but the most effective strategies require heavy parent/family input, and nothing you can buy can change that.

salondon · 02/09/2013 09:52

I think its early intervention. Which is a good thing and I could tell something was 'off' from about 8-9 months old.

So if this place helps by doing an assesment and providing intervention I dont see what could be wrong. You can call it pre-autism or whatever else you like, but I wish, I had been to somewhere like this and had £29K to spend (Which we are having to do many time over now)

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