Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Paediatrician suggested Tourettes??

4 replies

SmiteYouWithThunderbolts · 29/06/2013 18:11

We received the report from our paediatrician today after two assessment sessions with DS. He had been referred by the school nurse for assessment for ASD and/or dyspraxia. We had two meetings with the developmental paed - originally meant to be one but there was so much to go over, she decided to add another appointment in - during which time we went over every detail of DS's history from when he was a baby up to present day.

The report is several pages long and really very thorough. I'm impressed with how well she's summarised everything! The final page contains her 'impressions' and recommendations for further referrals. She mentions traits of both dyspraxia and ASD, but also Tourette's. I'm shocked tbh as nothing about that was mentioned in the meetings at all. She talks about his inappropriate use of words like boobies, bum, willy etc. and how he flaps his hands a lot in relation to this. She also said she would like some blood work to check his chromosomes.

This bit is all new to me. Can anyone shed any light? Why would she want to do blood tests? I know nothing about Tourette's but my impression was more of involuntary tics rather than the way DS acts. Confused

OP posts:
SmiteYouWithThunderbolts · 01/07/2013 13:16

Sorry, just bumping for those who haven't seen this. I would appreciate any insight anyone has. Thanks.

OP posts:
mrsbaffled · 01/07/2013 13:30

Hmmm...it doesn't sond like Ds's tics. TS usually starts with involuntary facial movements moving onto other movements and sounds over time. Lots of children with ASD flap, but it is not a tic, but stimming.

TS means you have had motor tics and at least one verbal tic for at least a year.

She is thinking of coprolalia regarding the inappropriate use if words. De he just shout them out randomly? Or use in sentences?

The blood test is to rule out things like fragile x, I believe x

finallyasilverlining · 01/07/2013 13:48

I should imagine that if he used the words boobies, bum , willy at a time when he was talking about say what he ate for tea last night it would seen as a verbal tic.

check this website out tourettenowwhat.tripod.com/all_about_tics.htm

My son has several both vocal and physical but as of yet nothing as been mentioned about tourette's. I'm not sure about the blood tests, but I had a look around and have found this (DON'T PANIC!) Because other serious health conditions can cause motor or vocal tics, your doctor may suggest having tests to rule out other causes. These tests include blood tests or neuroimaging studies, such as magnetic resonance imaging (MRI). I imagine it may be routine to go down all avenues before diagnosing something.

SmiteYouWithThunderbolts · 01/07/2013 13:51

I'll have to look up fragile x. Never heard of it. Feel like I'm in waaaay over my head with all this.

He doesn't shout them out as though he couldn't control himself. I always thought TS tics were sort of like hiccups in the sense that you can't suppress them. DS knows what he's doing and will either just shout out the words or will talk at length, make sing-song sentences about them etc. The other day we were standing in Primark waiting to pay and their advertising screen had shots of women modelling underwear. Cue 5 minutes of ds squealing 'ooh boobies! look, knickers! BUMS!' over and over. The more I tried to hush him, the louder he got. I wouldn't have said that resembles my understanding of TS at all, which is why I'm surprised it's in the report.

OP posts:
New posts on this thread. Refresh page