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I need a honk please

82 replies

coff33pot · 29/06/2013 15:09

Just that really havent got a week to right down all that is wrong in my world other than RL is testing me far too much lately. My dd is poorly, my bro isnt getting any better, my eldest is going to die if no one gets their act together and I have a huge hit list that I would gladly go to prison for. Nuff said sigh so just one or two honks would be really good :(

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SallyBear · 04/07/2013 08:46

Coff. I've been living under a rock this week dealing with our own personal family trauma, so I apologise that I've not seen this thread. I am sending you so much love and strength that I can muster. You are a courageous mother Coff. I am willing your beautiful girl through this hell. xx

hazeyjane · 04/07/2013 09:04

Thinking of you today, Coff. Hope your dd is improving, and you are on the way to getting some answers. Stay strong.

Tootsandblanket · 04/07/2013 09:12

How's everything coff? I'm thinking of your and your family. Fingers crossed things are better for you all today.

EllenJanesthickerknickers · 04/07/2013 09:21

Still thinking of you, coff. X

sammythemummy · 04/07/2013 09:41

Hope things get better for your family Flowers

ouryve · 04/07/2013 10:33

Just caught up on this, coff33. Thank goodness something is finally happening. How desperately ill does someone have to be to get treatment, ffs?

MumuDeLulu · 04/07/2013 17:26

coff33ee, sitting in a very expensive hospital bed can sometimes be a good way to get delayed out-patient things sorted faster.

From your list so far that includes:
Scan
Lumbar puncture
Assessment
Detox week
Eating specialist

This might be her chance to get to the Maudsley cos they'll be able to get most of that done link

MumuDeLulu · 04/07/2013 17:41

link

MumuDeLulu · 04/07/2013 17:42

This is a bit old 2005

popgoestheweezel · 04/07/2013 22:59

Sounds absolutely horrific coff, I do hope that things start moving forward for you and your dd very, very soon. Sending you honks in the meantime.

Iamaslummymummy · 05/07/2013 13:45

Sending you all my love and wishes for a good recovery x

coff33pot · 05/07/2013 23:04

ohhhhh make a coffee and take a seat lol today was a nightmare but got better as mother and daughter won in the end :)

Scan came back liver ok, kidneys ok, cant find one ovary (couldnt before) and cant see pancreas but saw a bit and that bit looks ok Confused told mri would be much better.

She has acute pancreatitis hence the vomiting. One doc yesterday said going nowhere for days another popped in this morning and told her she was well enough to be discharged.......yep you read it right.

DD beside herself saying she not ready and too poorly right now. Nurses up in arms as agreed no fit state to go anywhere. Still on drips, still on anti sickness drips, still on meds and still detoxing mind and still no food.

Still no neurologist, no nutritionist and no assessment. Consultant advised she is ok as she has kept a cup water down and eating is not important!

My lovely GP who basically wasnt working all day but did just for us phoned and advised them as still on drips, meds etc she should stay in until she could go into another detox hospital.

Within the hour the consultant got her drip taken off, left her with jug water and crossed off all her pain meds obviously to prove a point.

I arrive to find dd in agony, panicked, stressed out and scared.

Nurses bless them didnt agree at all and couldnt understand why she had no pain relief let alone being discharged. Consultant lied and had advised on records it was DDs decision! Both DD and nurses know this to be untrue.

Anyhow to cut a long day short 1 nurse stuck her neck out and asked the prof to explain it all and said in her opinion she was too ill to leave and perhaps he would like to come down and talk to her again and ask if she would like to be discharged, whilst the other nurses talked loudly for the phones benefit about how ill the girl is bless them. Wouldnt come and talk to me either. My lovely GP phoned DDs GP who was also not working and collectively made numerous phone calls and she is now staying in at least over the weekend and they will pursue detox despite no assessment seeing as she has "technically" been assessed during her hospital stay and needs this to happen sooner rather than later and is already in detox process and to dangerous.

Also going to sort out brain issue separately which is fair enough and I believe they will.

That gives me time to hassle eating disorder bits and shout down a few phones/self refer whatever it takes.

WHAT a fucking day!

OP posts:
zzzzz · 05/07/2013 23:25

This reply has been deleted

Message withdrawn at poster's request.

MumuDeLulu · 05/07/2013 23:55

UK Clinical guidelines acute pancreatitis

NoHaudinMaWheest · 06/07/2013 00:05

Good grief I can't believe this. It just shouldn't be true but is!

Thank goodness for sensible nurses, concerned GPs and especially warrior mums.

I really really hope that it does get properly sorted this time.

Hugs honks Brew Flowers whatever you need

PolterGoose · 06/07/2013 08:44

This reply has been deleted

Message withdrawn at poster's request.

coff33pot · 06/07/2013 12:54

I could seriously hug my GP! and I probably will :) he believed in me with DS and trusts my judgement now thank goodness.

On way to see her again now she is quite poorly and in more pain today so stronger meds I am so glad they didnt get to discharge her.

Thank you for all the info guys both here an pm it has helped greatly to have all this info to keep me in positive mood xx

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EllenJanesthickerknickers · 06/07/2013 13:02

Thank goodness they didn't discharge her! I guess today may be frustrating as nothing much seems to happen at the weekend and consultants aren't around. Sad Hope things start improving. Honk honk honk. X

lougle · 06/07/2013 18:12

That is apalling. When you have the strength, complain.

ilikemysleep · 06/07/2013 20:38

Just saw this thread. I can't imagine. Sending strength vibes...so sorry you are in such a horrible situation and hope dd is soon feeling better (and no other numpties try to discharge her till she is).

Summerloading · 06/07/2013 21:06

Am very late, but sending you lots of honks x

Badvoc · 07/07/2013 06:55

Still,thinking of you and your dd coff x

TheNinjaGooseIsOnAMission · 07/07/2013 08:51

that is just appalling treatment coff, hope things are on the up now. Honk honk x

coff33pot · 08/07/2013 23:45

It might be a good idea to make a flask and sandwiches for this post.......I wish I had before the day started.

GOOD news DD has been transfered to another hospital for correct monitoring. BAD news was to get there and sorted was the usual Coff33 chaos.

Morning - advised discharged - will do prescription to tied you over till to arrive at new hospital. Told not a transfer "as such" so start reducing your own 2 hourly meds from home you will be fine.

Mid morning - DD still waiting rings person responsible for detox. Told oh no you are not able to go there now as you been in this hospital for 6 days and so its all ok now and they wont fund it. So she would have to finish off at home despite health risk, fit risk, stroke risk. But they can arrange some support groups in a couple weeks! Told she was mistaken as she didnt have pancreatitis after all.

THEN a "detox person" told her it was perfectly fine to stop the meds as she wasnt on them long enough to make a difference! Yep JUST STOP. Unfortunately the fitting/seizures are nothing to do with withdrawal its to do with her cyst. Dont worry just leave now and make appointment for GP who will supply you with the meds we have still not given you and he will sort the head business out........just like that.

DD then flips at mother, no pain killers and no meds given as still waiting for invisible prescript.

Mother arrives. Plays hell pain killers and meds given. GP rings and I repeat that allegedly there was no funding for DD and no transfer arranged and she apparently has to cope it alone.

GP phones back tells us she has a bed its paid for by them and she is going in it. Tells them about cyst business and he sighs and reckons he aught to have another little word....

We are then making our way to other hospital with her records as requested via GP and told she needs no meds as it will all be taken care of.

Afternoon arrive at new place. Nice place, which I already know of. Freaks DD out bless them by sneaking cartons juice into her room, packs biscuits etc. Gives her a lovely dinner, ice cream even mother got ice cream lol and then another comes up with more puds. Cue DD in full on panic attack thinking she was being force fed due to the anorexia. No one told them bless them and of course they wanted to pamper and make her welcome and the usual understanding is that ppl on detox are usually starving.

Next panic. No meds since early afternoon so in pain, shaking and worried. GP comes, sees, is appalled promises we dont have to do all this on our own again from now on. Slow med reduction needed etc, health check, going to insist on MH support from now etc and get it moving. sorting head business on top of. Cue DD relaxing and trusting a bit more.

GREAT you think. Its then 7pm and yep you wouldnt credit it they dont have the meds in stock, they use different and GP was insistent a supply was sent with us. Cue major panic attack from DD whilst waiting for it to be sorted as she is now 6 hours without 2hrly meds. Poor hospital goes ballistic at other one and wouldnt deliver meds via taxi. Only by prescription to someone valid. Cue MEEEE then driving for an hour to go get the bloody things with DD in the car as considered it the best way was to keep her with me incase she fitted. Hell we were on our way back anyway....

Nearly midnight and DD has finally got into bed with pain relief and meds etc.

I am having a decent cup of coffee and starting to think when are we going to wake up from this nightmare lol

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coff33pot · 08/07/2013 23:51

Oh and when asked what the last bloods read was told it really doesnt matter now.

So when we asked at new place why she is in so much pain if she didnt have pancreatitis and why was her stomach so distended and was told dont be silly you are in pain because that is what you have you poor thing.

See? nightmare none of it could be real

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