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how often does the Salt see your DC (severe s&l delay/disorder)

35 replies

chocnomore · 19/06/2013 18:12

Dd gets seen only once a term for about 30 mins. She attends a MS school. her S&L is under first percentile.

I wondered what others in similar circumstances get. Dd's main dx is asd.

OP posts:
magso · 20/06/2013 10:13

Poshcat our LEA used to use years of delay rather than centiles. This allowed them to use yet another blanket policy ( the 3 year delay) that was particularly harmful to young children. Ds was turned down for a SA at rising five - having added up his 4 best scores and simply divding by 4 he was less than 3 years behind academically!! Although in fairness to them they blamed the school for not jumping through enough hoops. The salt was the first to use centiles. I do think centiles are better than years although harder to understand.
Handiwomen I agree! But so shocking that such tactics were and still are still required!! Sadly the Salt resigned soon after. We all need PhDs in wheeling and dealing!

We paid for a private specialist Salt when ds was preschool and non verbal (and awaiting the 3 word stage needed for NHS salt at that time) to get communication up and running. We could only afford 6 times a year so the therapist basically assessed and taught me (ABA based) what to do. It needed more I am sure, but was extremely helpful.

chocnomore · 20/06/2013 10:29

poshcat, that is just awful. how is she supposed to cope in school without a lot of extra help? DD (5) has a full time 1:1 support and would be drowning without it.

have you applied for SA yourself? If not, IPSEA have a model letter here

OP posts:
AgnesDiPesto · 20/06/2013 10:30

Ds never had direct therapy either
Severe Lang delay or disorder - never been told clearly which + asd
Statement says 'needs every language structure taught individually'. Also loses old language when teach new.
Pre tribunal seen twice a year
Post tribunal seen 6 times a year but just advice to ABA and nursery staff.
ABA found SLT ignorant about autism and esp when ds went to school and got new SLT visits became more hopeless. SLT not want work ABA only with school. Kept recommending school groups run by TA although ds not have a school TA and could not yet learn in a group. Mostly because what they always recommend.
Refused to support us in telling teacher to reduce language.
Eventually ditched SLT and paid privately.
Now got direct payments as LA is pathfinder and using ABA friendly private SLT.
Is much better. Funded 12 hours per year consults with ABA. We don't need direct SLT at moment as ABA do it.
If we had had no SLT for past 4 years would have made no difference. All progress been via ABA not SLT. Quality here is shocking and reached decision was actually detrimental to ds - and horrendously stressful to us- to have completely hopeless and clueless but very defensive and aggressive SLT involved.
I would go for statement and ask private SLT who can do direct and indirect on regular basis and with specialist expertise.
Most NHS SLT depts are not properly resourced to actually provide therapy. Bizarre but true. Most also have limits on what will provide eg bands. Ds needs always been over the top band they provide. So as nhs can't provide La must under statement step in and fund it privately.

zzzzz · 20/06/2013 11:07

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Handywoman · 20/06/2013 11:37

Grin zzzzz that it brilliant

hazeyjane · 20/06/2013 12:48

awaiting the 3 word stage needed for NHS salt at that time

Is it a case then that children have to have some words before getting more consistent therapy?

Yay to ds zzzzz

zzzzz · 20/06/2013 13:03

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mumof5plusazoo · 20/06/2013 13:39

Hi,
My ds has a disordered speech disorder amongst other dx he is 4 and is home educated he is seeing his nhs salt weekly for a block of 4 weeks then 4 weeks off and repeat. His sessions are around half an hour we also integrate a lot into our daily lives.

mumof5plusazoo · 20/06/2013 13:42

Sorry posted to soon.
I' m so sorry with the struggle you are all having to receive the care your dc needs. We have clearly been very very lucky.
Good luck to all of you

iwanttoscream · 20/06/2013 14:10

My dd has speech and language disorder, she was seeing salt roughly 12 times a year. But she will be going to a ss in September which employs own salt and nhs salt will still see her as well. Hopefully! She gets 3 x 20 mins a week with ta for salt.

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