Thank you for sharing that with me badvoc, you and your ds have certainly been through alot! Your ds sounds like an absolute credit to you :)
My dd was born overdue, normal birthweight, normal apgar etc. She was very hardwork as a baby, constantly cried and was a very slow feeder, fed slowly and as a result constantly day and night. She didn't suck well, would constantly drop her dummy, up to a point where I would be up in the night up to 20 times putting her dummy back in.
She reached her milestones although never crawled using all fours, she only ever cammando crawled, she would also only kneel not sit.
Like your ds her sen only became apparent in year one. Dd has dx phonological disorder, global learning difficulties, severely delayed fine and gross motor skills, delayed visual perception, bone deformation in her left tibia, shortening of left leg, increased tone in both legs plus possible adhd and sensory issues.
All of the above has only been confirmed in the last year and its come as a huge shock to me. Now dd is getting older it is becoming increasingly obvious how different she it to her Peers :( her movement is generally very lose and she is always on the go and making strange noises. I literally have to watch her like a hawk.
OT and pead have both recommended SA although school disagree and say they are meeting her needs, although she is working at p levels and has made limited progress. She isn't receiving any salt, OT or physio.
Her needs are clearly complex, salt keep discharging her as she can't engage in the therapy due to her attention problems, although school claim she doesn't have any attention problems. I just hope the EP can provide some guidance that the school will act on.