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So confused! 2 days, 2 different professionals & 2 completely different opinions re: asd!

57 replies

osospecial · 29/05/2013 18:05

Ok so had first OT appnt yest and posted about how it had gone well and how I thought she had really understood dd. she said really early on she was surprised dd hadn't had dx of asd and thought she showed enough symptoms. She said she will put this in her report and send copy to paed suggesting dd be assessed quicker than 2 yrs time. (Paed not sure about asd as no issues with routine just speech and communication)

Ok so today we had an appointment with a Biomedical doctor and nutritionist who said, also quite early on, he didn't think dd has asd. He looked in throat and said it was red ( think he said strep throat) and in her ears he said there were small bubble type things behind ear drum which is stopping her hearing clearly. He has put her on dairy and gluten free diet and referring to ENT and doing hair, urine, stool and blood tests.
He said it was really good news and I want to believe it but my head just feels like its spinning really fast at the moment!
I'm confused as it doesn't explain things like the fact that dd babbles to herself in her own world not to me as if trying to communicate and also the fact that she completely ignores peers and has never even tried to play or even give eye contact to them. She is better with adults. And she is getting obsessive with things. the OT is not the first person to suggest dd has asd. Also we started this whole process in audiology but dd was discharged over a year ago. Feel like were going in circles.
Obviously I'm going to take this advice and follow what he says and see what happens and if this is right then it is really fantastic I'm just struggling with these two complete different opinions. I guess if he is right then all dd issues can be 'cured' and I'm scared to believe that in case it's not true.

OP posts:
dev9aug · 30/05/2013 14:30

phew, thats good..Grin

I wholeheartedly agree with you. It wasn't the best of ideas to tell OP something which he is not qualified to say.

Oso we have been there and done that. In the early days, we were told similar things by a number of people, mostly by people with backgrounds in alternative therapy..Blush. I will see myself out now Blush Some of them have useful things to say, some can be life changing, but you have to learn to filter out bullshit.
And if you are unsure, then treat it like it is ASD, she will only benefit from the intervention regardless whether she is on the spectrum or not.

PolterGoose · 30/05/2013 14:36

This reply has been deleted

Message withdrawn at poster's request.

osospecial · 30/05/2013 15:59

Thank you all for your advice Thanks

OP posts:
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Biscuitrules · 18/03/2017 07:47

OP - on the routine aspect, another one here where my DS (3) has no issues with routine and in fact is unusually easy going. On the other hand, has no spoken language and limited social interaction (it is hard to get his attention, he's very focussed on what he is doing, he has no interest in people).

We saw a lovely NHS paed who said her gut feeling is that he probably has ASD but for now she could not diagnose him with that as he didn't meet the 3rd triad and instead she gave us a diagnosis of "social communication disorder" (under the American diagnostic criteria DSM-5). She said to use all the same interventions as for autism.

Therefore its not a binary ASD or nothing diagnosis. A child can still need help even if they don't tick all the boxes and you shouldn't be sent away with nothing if you feel DD needs help.

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