FAMILY WITH OLDER CHILD WITH DOWN'S . ADVICE NEEDED

[jules27]

Hi i,m looking for some advice from someone in a family that has an older child with down's. My lad is 11 and need some help with a problem that has suddenly apperared at school. I say older as prehaps then you have been through a simular situation with you child. It isnt about the school rather what my boy is doing at school .
Jules

Hi Jules. I can't help but as a mother to a 4.5 yr old with Down's syndrome I didn't want to just ignore.

Perhaps I can't help with regard to advice but am here to listen anyway.

Hope you're both ok.

Hi Jules , I cant help re the Downs part but my DD is an sld child with an undiagnosed syndrome. She is 16.
It might be no help to you at all though.
Wishing you well and luck in your search.

Thanks for getting back. My problem is my son who has been dry for over a year now has suddenly started wetting himself only at school . I have spoken to all his teachers and LSA and we have decided that although the problem started because he probably wasnt getting the right amount of attention or the right attention ie not praising positve attention enough and making a fuss when he wet himself. THIS IS NOW FAST BECOMING A BAD NEGATIVE BEHAVIOUR PROBLEM . oops sorry, although we know what the problem is i dont know how to solve it. He never wets himself at home and i have to take what the staff say as to what is going on as truthfull Any ideas as to what to do or where to go on this one.This is the first time in a while that i am feeling a bit low as i don,t know what to do . Just when i thought i was dealing with his DS, why do all these feeling of being completly out of my depth rear their heads again. Any advice please. Thanks

jules - my child with ds is much younger and so I can't give any practical help. I can refer you to parent web group that may be of help - or don't be afraid to contact the Down Syndrome Association as they can usually refer you to someone who can help also.

\link{http://www.loads.org.uk/forum/index.php\parent group}

\link{http://www.downs-syndrome.org.uk/\DSA UK}

didn't know that LOADS had a forum eidsvold!! Just registered and will spread the word as much as I can. Got a kentwide meeting tomorrow night too!!

oh they have had the forum for a while - I keep forgetting to check in - I post as morgana - and have done a few posts but very helpful for parents to hear from other parents.

Only a thought but one that immediately sprang to mind!!!
Have you made certain that your son is being toileted and encouraged in the same way he is at home.
My dd went on a toileting programme between home /school and respite but was wetting much more at school because as soon as one member of staff was on leave they would forget to take her on time etc. She is still doubly incontinant now I am afraid.
I hope you get it sorted..It's great when you feel things have moved forward

I have a 6 year old girl Down Syndrome but I cannot offer help as she has been dry since 3 and became dry at night at 6 on her own accord. but my best point of reference has always been the Downs Educational Trust . They also give telephone advice , but free email advice.
web site . They deal with Downs right through to adult hood

www.downsed.org/
or the Downs Assocation
Hope it helps