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DS has epilepsy and has started to hear wrong words.

9 replies

Fluffy1234 · 11/05/2013 19:07

My DS is 12 and has epilepsy. He has started to mention he hears words wrongly. I will take him to our G.P this week but wondered if anyone had any experience of this?

OP posts:
Flappingandflying · 11/05/2013 22:33

Sorry, no experience but sending you supportive vibes.

CouthyMow · 12/05/2013 01:23

Is he hearing the words 'wrongly', or is it that he can't get them to 'make sense'.

A sign of an imminent seizure for me is that sentences that people say to me don't make sense to me.

One example is my DS1 asked me the other day (around 4/5 hours pre-seizure, not that I knew that at the time) "I'm waiting for Mr Magic Man". Or that's what I thought I had heard him say. Turns out he had said "I'm waiting for you to get me one".

Now, my ears were just 6 inches from his mouth, he wasn't muttering, and I'm not that deaf...

My brain just can't process language properly when I'm going to have a seizure. I can't speak properly either - I will have word placement issues - "pass me the telly changey thingy" instead of "pass me the remote", and also whole sentences come out as gobbledygook - "iblurgurple" instead of "I'm tired".

Would be worth him keeping a seizure diary and noting down when he notices this issue...

My guess is it's some sort of pre-warning.

(Just a guess, mind you, not clinically trained!!)

CouthyMow · 12/05/2013 01:25

And when I say the gobbledygook sentences, it is really odd.

I'm thinking "I'm tired". I'm saying "iblurgurple". As I am saying "iblurgurple", my brain is thinking "That didn't sound right!!"

Confused
zzzzz · 12/05/2013 07:49

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Fluffy1234 · 12/05/2013 10:35

Thanks everyone for taking the time to reply. It's that he hears the words wrongly. I even thought perhaps he's havIng partial seizures without me realizing.

OP posts:
CouthyMow · 12/05/2013 11:26

My brain also processes speech far slower than usual if I'm pre-ictal, even if I do understand it. It's like my brain is full of cotton wool, and the words have to get through it!!

zzzzz · 12/05/2013 12:14

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CouthyMow · 12/05/2013 16:11

There probably is, zzzz.

zzzzz · 12/05/2013 16:14

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