The DDD Study

[SallyBear]

We are now being included in the study as the three known genes for Treacher Collins Syndrome came back negative. Anyone else taking part in this study?

lougle. Do you mind saying how long after August 2011 you got the letter?

I got it last year, I think. So 2 years in.

Thanks Lougle. I think I will give it another six months and then ask ds's paediatrician to write.