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Here are some suggested organisations that offer expert advice on special needs.

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Here are some suggested organisations that offer expert advice on special needs.

SN children

A quick what would you do??

56 replies

claw2 · 24/04/2013 13:29

Ds has a food phobia, very limited diet etc (and hates writing)

I just got him to write a 'shopping list' and got him to agree to come shopping and for him to do his own shop ie only the things on the list, but he pushes the trolley, put the things in etc (he hates shopping usually and its a big performance to get him to come and he wont touch the food i put in)

Now he is refusing to go, as he has to get dressed (something else he hates) but will go happily if i dont make him getted dressed and let him go in his pj's and flip flops.

Im obviously asking him to a lot of things he doesnt like all in one go. Would you let him go in pj's or make him getted dressed?

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claw2 · 26/04/2013 08:33

The 'joint up' approach of professionals working together seems to involve giving everyone permission to talk behind my back.

CAMHS have been onside so far, BUT school and LA are using social services in a 'see we told you it was mum' way, social services agree with us.

I am also at the disadvantage that ds's therapist, who he hasnt since November anyhow, has now left and been replaced. so all they have to do is convince new therapist, who has never even meet ds or me.

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claw2 · 26/04/2013 09:03

Ooops wrong thread

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MareeyaDolores · 26/04/2013 15:06

Maybe not the wrong thread claw

Sudden eureka moment (maybe) that could you use the clothes problem to get an occ therapy appointment? There's no way an OT would think you'd secretly gone into his head and artificially tweaked the sensory processing settings

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claw2 · 26/04/2013 16:33

Mareey, i have OT assessments and reports coming out of ears, ds has a 'dx' of sensory processing/modulation disorder or its listed as a 'difficult' with his ASD dx. Its now just a question of getting them to provide therapy and follow the OT recommendations.

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MareeyaDolores · 26/04/2013 21:10

Yep, thought you did. Just trying to find a way of getting your DS onto a local NHS OT caseload (albeit short-term) so there's a sensible bod who knows something about neurology involved in these multi-agency meetings.

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MareeyaDolores · 26/04/2013 21:12

Sometimes one voice of reason is all it takes
Makes it harder for a forceful idiot to impose groupthink error