Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Social occasion with offspring - what do I do?

7 replies

r3dh3d · 10/05/2006 10:33

OK, I don't know why we've not come across this problem before but we haven't. So need some advice from you wiser and more experienced peeps...

I've just received an email from the wife of a university friend. They have two daughters somewhat older than ours (8 and 6, I think, both NT) and we sadly lost touch around the time their kids were born - sent cards and stuff but that's it. I'm not sure if they are aware of DD1's difficulties. They have got in email contact out of the blue and invited us to a Saturday afternoon/evening barbecue with some mutual friends, both with and without kids.

We've been to a couple of socials with DD1 in tow, but always things like kids birthday parties which are only for a couple of hours and one of us has to go and "mark" DD1 for the duration. One of her problems is a metabolic disorder that means most food is poisonous and as she has approx 0 comprehension/co-operation you just have to spend all your time following her round and preventing her from putting things in her mouth - or, indeed, doing anything else that is dangerous (like licking the radiators - or, in this case, the barbecue). We've never tried to do anything for this long or where food is the main point of the occasion. Nor something where presumably the point is for the kiddies to run amok unsupervised in the garden while the adults sit round a table and eat and drink - DH (it's usually DH following DD1 around) would stick out like a sore thumb and I think would feel very awkward - I'm sure we'll feel everyone is staring at DD1 anyway but this precise scenario is going to be worse, I think. And it's bound to be more awkward because we'll spend a lot of time explaining to people what DD1's conditions are, and asking them to keep food out of her way, and stopping her from chewing their furniture etc. etc. - so I can't help thinking, will we be making the whole thing awkward for everyone else as well as us and end up spoiling their event?

However... there will be people there that I haven't seen for years, and do miss. And we aren't doing anything else that day. And I don't know if refusing invites because of DD1 isn't the start of a slippery slope that sees us eventually never leaving the house.

So - what do we do? I had thought of raising it with the lady who invited us - but that's not a runner really because the only thing she can say is "oh yes, please do bring her it will all be fine" - you can't say "no, don't bring your disabled child, it would be too much hassle for everyone" can you? Especially as I don't know her so very well so it's harder for her to be absolutely frank - and she and her husband are quite serious Christians so under a stronger than usual obligation to suffer little children, iyswim.

Oh I dunno. In knots over this one.

Thoughts?

OP posts:
PinkKerPlink · 10/05/2006 10:36

I think you should go, your dd deserves to be there as much as everyone else.

Would you enjoy it? and would she?

macwoozy · 10/05/2006 10:44

I bet your old friends would love to see you there after such a long time. If it really is difficult could you not leave earlier? You'll be kicking yourself if you don't go.

Jimjamskeepingoffvaxthreads · 10/05/2006 10:48

Go and take it in turns to shadow dd. That's what we do. If I want to go somewhere to catch up then I would go alone, if its a family do then we take it in turns to join the conversation and do the following around. BTW if friend's ever say "don't worry we'll help out as well" assume they won't :o

I think if you go with the right expectations (ie that you won't be sitting down joining in the chat with everyone else) then its fine. If you go with the wrong expectations then its depressing as hell.

bluejelly · 10/05/2006 11:09

I would ring and warn in advance, but accept the invitation. I can't imagine being the slightest bit bothered by someone else's child having special needs. People need to realise that not everyone in the world is NT !

anniebear · 10/05/2006 22:00

I could say go, but I don't think I would if it were me

Only because I know what I am like and would be so upset and stressed out and not enjoy one minute, especially if no one knew about my Daughters condition

But that me! I am paranoid!!!

If I really wanted to go to it I would go on my own, or even just go with my other daughter

But I also agree with what the others are saying

anniebear · 10/05/2006 22:03

Just re read your post!!! You do really want to go!!!!... I would do as was suggested and maybe ring and explain beforehand

And if they are serious Christians they should be even more welcoming towards your Daughter!

Let us know what you decide!

I hope I didn't sound too negative on my last post, I was just saying what I would do!!!

ntt · 10/05/2006 22:09

Go - take a sense of humour and have a few drinkies! Yes you'll be charging around like a madwoman a bit and you'll be done in by the time you get home, but I'm sure you'll have a lovely time

New posts on this thread. Refresh page