Nervous-will they think I'm neurotic

[stapo1]

Was just wondering has anyone been in a similar situation?
DS (3.3) has appt tomorow with his paed. I requested an interim appnt because of concerns about his behaviour & anxieties.
His strange behaviours & anxieties seem to show when outside his normal routine (weekends) or big spaces/crowds, fast moving. So consequesntly his lovely playgroup very small very structured really have seen very little of it. When I asked if they had seen anything to concern them they said no he does as he is told. The only people to witness this is me, dh, ds1 & other family members.
He is also extremely compliant & I know if the paed asks him to do something, if he can he will!
He already ahs diagnosis of global delay & mild CP. His physio has seen the occasional quirk & his OT assessed him in playgroup last week, didn't observe anything out of the ordainary, just observed delays & very little vocal expression.
I have been keeping a diary of the phobias & dislikes but they change so quickly, sometimes daily not realy sure they'll be anything to observe! Will she think I'm mad???

I don't really have any advice except stick to your guns until you get through! I think you are very wise to have kept the diary. Can anyone in your family or your dh go with you for moral support? I hope it goes well and you are taken seriously and you get the answers and /or help you need.

Saker
Thank you for the support, dh working away just think I'll have to give it a go!

no advice really just wanted to wish you luck. i used to get so nervous going to appointments so know how you feel.

I bet they won't think you're neurotic at all. A decent Paed will know that some children will seem fine in a very structured setting but fall apart in other situations.

Good luck. :)

appointments are the pitts arent they?:) doesnt it help to know that we all hate them?

they wont think you are neurotic at all and at the end of the day it isnt their job to judge you even if they did

Thanks everyone for your support!

How did it go?

Hi Annibear, thank you for asking, mixed feelings really. Unfortunately she didn't think I was mad.
I had collated the diary into a list of his anxieties, dislikes, routines & behaviours. We talked through the list & as ds was a bit anxious & out of his routine he started his constant repetative questioning, today it was about who was collecting his brother from school & showed clear anxiety. He also needed an explanation for every noise in the building.
She was not suprised that the playgroup have no concerns & is probabily due to the fact that he feels secure in the routine & structure & the fact that he doesn't have tantrums but withdraws & is totally compliant is just as concerning as the child who has tantrums.
So she said that he was displaying behaviours typical of a child on the autistic spectrum. She also said that there was a possibilty that his problem with crowds & fast moving objects may be to do with his visual perception/spacial awareness problems (apparently quite common in children with mild CP). She is going to refer him for full multi disciplinary assessment with Autism team to decide extent & if he ticks enough boxes yet for full dx although she is confident he will be high functioning? (is that the correct term)
On the plus side she said she was impressed with his speech compared to her last assesment but she will chase his SALT & she had received a request from DWP for our DLA application & we discussed what she was going to put in it!
I feel I need to understand more can anyone recommend some reading that will hel[p me understand Autism & particularly from ds perspective, also best practice, should we discourage unusual behaviours or just let him take the lead.
Longer message than I expected, if anyone is still awake thank you for listening!

Well I'm glad the paed listened to your concerns but sorry she was unable to dismiss them. I'm not sure what help you have already but would suggest you try to get portage if you don't have it yet. Others will be able to recommend reading better than me but I know the National Autistic Society website can be very helpful. I'm really sorry that you are going through this especially with your Dh away.

Thanks Saker,

I have had a look at a few websites there is a lot of literature out there.
Not sure were to start, I guess I'll work my way through them until I feel a little more informed.
Anyway tonight he flooded the bathroom & while I was mopping up he hung all the baby wipes over the radiators & used my kitchen roll to wrap his cars up in. Oh well at least teh floors clean!
Thanks Again