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Here are some suggested organisations that offer expert advice on special needs.

Just need a blaaaaaaaaaaahhhh moment.

5 replies

emmalou78 · 08/05/2006 13:19

My heads everywhere today..

First off I had ot have a quick word with ds1s teacher, it seems a girl in the class above is bieng a bit bossy with him, he says he doesn't mind not been aloowed to play with boys and girls inhis own class [!] and that its sort of ok that she doesn't let him have his drink or all his lunch sometimes, but whenhe's brought home his lunchbox and his drinks unopened and half hislunch is left becuase she's making him finihsearly to play with her not his same age friends, well you can see why I felt I should mention it surely..

Then it was ds2's IEP at preschool, which went OK but teh Ed Psych kept me afterwards, to check through her report [which, BTW is amazing I was blown away given how muh like a choclate saucepan she's been to date] then needed a full lowdown on elijahs history which always makes me feel a bit wobbly, he's my baby and I don't revel in describing how bloody awful he is, anbd hw far behind his peers he's falling... then she discusse dthe long term options re education wiht me, and she agrees that whilst yes he's improving all the time, its lot of sidestep[s towards appropriate behaviour for he developmental age rather then progress forwards, so he's still stuck at the 18-24 months level at best, save for his skills with jigsaws! and agreed that ye, mainstream has to be tried, but if things carry on in the same vein [that is if his ASD stays low functioning] then once the more regimented learning somes into force it would be more appropriate for him to go to a specialist unit or ASD school, they want ot trial mainstream becuase he does draw an influence from his peers and tehy feel that whilst his young and his behaviours forming to place him amongst children with more severe behavioural problems would be counterproductive...

I just want whats best for him, an dif its going to be special school, then I hope they recognise it early and make the transition.

On the plus side, plans are already being laid for his move to big school in january! and the Primary School SENCO is being invited ot his next 2 IEP reviews in sept and dec.

Sorry for the moan! Felt a bit like putting my head in the oven earlier Grin and felt I should get it off my chest...

take care.

xx

OP posts:
Jimjamskeepingoffvaxthreads · 08/05/2006 13:30

I was told the same bollocks about special schools. In your situation I'd (if I had my time again). I would push to see the soecial schools as well and make a decison based on what you see.

How is your child's imitation? We were given all the spiel about mainstream peers etc (in the same reports that would mention thathe couldn't imitate a thing :o). You do not have to try mainstream if you don't want to (we were told you did). Your child is not an experiment! If you want to try it, fine etc go for it, but if you have reservations don't be pushed into it!

emmalou78 · 08/05/2006 14:07

HIs imitations OK, he does follow the lead of a group, even though he doesn't have the skills or inclination to engage with them, he'll walk in line, and sit for story and snack becuase everyone else is, but if anyone kicks their legs, or blows raspberries he HAS to join in, becuase it gets a reaction! [he'll also copy falls etc so he needs close supervision!]

The school he'll go to, is the same one his brothers at, its a small church school, who have very good provision for ASD at all levels during the infants and HFA/AS in the juniors.

Part of me thinks it could be a good idea, part of me isn't sure, Its in my report for the statement that I only want mainstream if its 100% approriate...I've made that very very clear.

OP posts:
PeachyClair · 08/05/2006 14:25

emmalou, I can identify with a lot of your post. Sam's IEP today as well, at 3.15, I have to mention he attacked me with a mop today as he didn't want to go school. Sad I adore him, but he's a nightmare and I feel like a crap Mum for saying that.

I've been getting a lot of support from a friendsrecently who has a much older ASD son, but she has decided Sam has no problems as he can make eye contact with her. So I'm back on the self doubt again!!!!!

I really hope they sort his educatioon for him early emmalou, I often feel like I'm thrashing about madly wioth DS and getting nowhere. Sad

emmalou78 · 08/05/2006 19:55

Peachy, try not to flounder in self doubt, I'm sure your doing your very best for your son.

My boy makes wonderful eye contact with people. That doesn't stop him being so hard to handle I could sit and cry all night, doesn't wipe away teh bruises from being bitten, or the bumps on his head where he bangs on the wall after people leave the house... certainly doens't alter the fact that he stopped developing somewhere between being 18 months and 2 years old dopesn't birng i back on the days when all he does is line up trains put them away, get them out and start over never making a sound, oblivious to us all around him..
What I mean is only a childs parents and family know their individual problems, just becuase one hsa a skill others don't it doens't mean they aren't as difficult in other ways.

OP posts:
Jimjamskeepingoffvaxthreads · 08/05/2006 22:41

hmmm your friend needs to meet ds1 Peachy. Severely autistic, can't speak at all aged 7, but his eye contact can be the best in the house (depends on the day, but is generally very good for an autistic child). All his reports talk about his wonderful eye contact. He's as autistic as its possible to be.

emmalou- I'd really ask to go an and see all the options, until you see somewhere its impossible to compare.

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