DD has now offically no delays! But what do I do about statementing?

[Piffle]

DD (3.5)has Noonan Syndrome, seems now quite mildly after 3 yrs of pretty full on, SLT, physio,portage, OT and stuff.
Now she has her SLT review last month and now has no speech or sound delays, she had her paed development check and now she is above average not behind (up to 18 mths delay at one point)
Her one unchanging problem is her vision (nystagmus -uncorrectable at this point), for which she is being statemented - however if she ahs no delays anymore, is it still wise to pursue this course, will she even get the statement?
I have wanted this moment for 3.5 yrs - now I do not know what to do for best, if she has a chance of entring school as an average kid, I'd love that for her.
Any ideas?

I can only agree with socci on this one.

If its related to her vision, then it will be based upong that problem. She will start school as an average kid! all it will do is provide a legally binding document stating what help your daughter needs, and in most cases an allocation of funding provided to the school to make sure they have the staff and resources availiable.

Its not an easy road getting one, so the sooner you start pursueing it the better.

Its wonderful when all the work put into little ones pays off isn't it!

I would carry on with the statement , better to have it than to not

And fantastic news about your DD you must be so pleased!!

Great to hear that she is doing so well.
Our story has some similarities, DS1 is deaf but speech and language is normal and according to school he is above average and has no learning needs. Our problem comes with equipment (or more to the point its management), he has thousands of pounds worth of kit (provded by the sensory support service, without a statement) but this needs regular checking which at 5 he is too young to carry out, the question is who does the job? We have managed this year as there is a TA in the class but there won't be in year 1, we were about to apply for a statement to cover this but from April you only get one if you need over 10 hours support a week. Checking equipment would take at most 1 hour a day, realistically most days 20 minutes.
I think it will depend on the type of support that your daughter needs and I don't know anything about that condition, my understanding is that a sight or hearing loss will automatically get you on school action plus. My son also gets visits from a teacher of the deaf and there may be an equivalent for sight problems.
I can understand your comments about wanting her to start as an average child, I knew all along that I didn't want DS1 to have a TA attached to him as that isn't the support he needs but it seems to be the type of support that statementing provides, which in my opinion is so short sighted.
I've rambled but I hope it helps a bit

Thanks for the replies everyone.
DD already has peripatetic support through the couple of nursery session she attends, her prblems will most likely start ahen she starts reading properly, things like text size and clarity, projector images, where she sits in class to see, that she is encouraged to tilt her head for best vision. Special equipment is unlikely, and I do not know that there would be a TA, specifically for her IYKWIM.
I am just needing to know how hard to fight for the statement incase the LEa let us down...
Hmmm will wait and see and keep on the course then :)

tooth and nail fighting may be neccesary I'm afraid... get all the reports etc you can.