Does anybodys know about coeliac disease and food intolerance testing?

[dontknowwhat2callmyself]

DD age 6 (asd diagnosis) has major issues with food - a very very restricted diet. We are on the waiting list for an appointment with an NHS dietician but I'm not sure how useful this will be as to be honest I have tried everything to get DD to include varitey in her diet and it just isn't happening.

I would like to have DD tested for coeliac and intolerances - she is always tired, gassy and bloaty etc... I'm not sure the NHS dietician will be able to help with this. Has anybody had their DC tested privately or within the NHS?

Thanks Poltergoose - DD sounds a little similar to your son she ate porridge, sandwiches/toast with various healthy fillings, yogurts and biscuits so although limited varied enough to get all she needed but that all stopped a year ago a now she will only eat cereal bars and cheese and chocolate . I did see a place in Reading that offered saliva testing for coeliac so was considering that as I'm not sure if GP would agree to testing.

We saw a private dietician who wrote to the GP and recommended a coeliac test (which they did) then her recommendation was to eliminate gluten and dairy and reintroduce each separately to see if it had any affect.

From what I've learnt there are no reliable tests as it were and really it is a process of elimination.

My GP wouldn't agree to the test initially but was obliged to once he had a letter strongly recommending it from the dietician (arse covering I guess!)

No - she will not eat different types of cereal bar although thinking about it the ones she eats are probably one of the most healthiest on offer with no artificial colours or preservatives so she probably is getting a lot of what she needs.
Cats- thanks for the info about the dietician hopefully she can recommend testing to our GP if she feels necessary. Our GP by his own admission knows very little about ASD he does not understand possible underlying pschological issues for food refusal - his advice was to starve DD ie she will eat when she is hungry. He really does not understand.

All the DSs have been tested by the NHS in varying ways.
First port of call was the GP for symptoms similar to those you listed. Included diarrhoea, fussiness etc.
GP referred to paediatrician who referred to gastroenterologist.
Between them they have had endoscopy, fluoroscopy, hydrogen breath tests, samples of wee and poo, blood tests etc.
The invasive tests are pretty conclusive for coeliac, but you. Have to be consuming it for testing. The damage internally is pretty indicative.
All the other tests are also good at determining lactose, dairy, sucrose, fructose, glucose and specific intolerances. If you have suspicions of particular foods that give the worst symptoms, you can add them onto a blood test.
Also remember that you can be wheat and gluten intolerant instead of coeliac. So if it comes back negative for coeliac, you could do a 3week exclusion test to remove wheat gluten and chart the differences, including a poo chart.

Thanks aunt - wow that is a lot of tests between your DSs. The thing is I'm not sure DD is eating enough gluten at the moment although the cereal bars are 50 per cent oat's I have heard that sometimes oats can be tolerated in people with coeliac. At least I am feeling hopeful now that between the dietician and gp one of them will agree to testing.