botox into salivary glands

[infamouspoo]

Anyone had this done? ds had it two days ago to stop excessive drooling (he has very severe CP). The drooling has almost stopped but now he has trouble swallowing. We werent given any leaflets and the ENT consultant didnt come back after the op to say anything.
Normal? Worrying?
I think 4 of the main glands were done so he still has saliva but I dont know whether to be worried or not. Its a saturday so I cant talk to anyone at the hospital.

bump

I would be phoning NHS direct tbh.

they know stuff all about disabled children and post operative side effects.

which is why I asked if anyone else's child had had this procedure.

I'm sorry you didn't get many posts infamous. I don't have any experience of botox but I'm sure there are some here who have mentioned this in the past. I'm surprised the ENT consultant didn't visit after the op, I wonder if they just assume everything is ok or are the nurses able to deal with after effects?

I realise now is Sunday but if your still worried can you contact the ward?

Some one else must have been through this.

Anyway I'm sorry I wasn't much help, hopefully a few virtual ((((hugs)))) may send the strength you need to deal with your worry and concern.

Thanks Devietenigma. I was hoping there were other parents of children with cerebral palsy who'd experienced drooling.. It was such a huge problem. He was choking on it (his swallow isnt great anyhow) and he was becoming very self conscious and embbaressed about it. The drugs had loads of side effects and the patches gave him a rash. We've used botox for tight muscles with no ill effects at all but never into the salivary glands.
I dont know anyone in real life who has a child with such severe cerebral palsy so feel very alone. He;s also partly tube fed.

It was done on a day ward so it's closed over the weekend. Tomorrow I will try ringing his ENT consultant. We've only met this guy once and I was very surprised he didnt return after the operation to check up on us. Especially after googling and finding out how serious the side effects can be and how after care should be (from US hospital sites). Of course, this made me more worried. DS now has a cold which isnt helping matters as his swallow gets worse when his nose is blocked!

Hi Infamouspoo,just noticed this post.My dd,who has a rare form of CP(Worster Drought Syndrome)had Botox for the first time at the beginning of Feb at AlderHey in Liverpool,when we were discharged we were given an alternative emergency number for over the weekend (as she had it done on a Friday).It has been a bit hit&miss for my dd,but it is definitely still bad when she has any ENT infections,so maybe that is the problem.Have you got any numbers at all at the hospital to call??

...that is why I suggested phoning them op. They will most probably send you to a and e which if you are very worried is probably the best place?