Ding Ding round 2

[bochead]

It's just not fair to keep bullying me via SS.

what's up?

oh ffs!

School got involved with the request for home safety equipment at night (DS sleepwalks) obviously this means CP investigation is the way to go as SS OT team say it's not their job. Nice man on the phone tonight told me he needs to come round and check my untidy house - I was charmed .

This time last week I was over the bloody moon cos DS got himself changed before and after a sports lesson without any help. (Big thing we've been working on at home).

Normal family life - they have a real issue with allowing us to enjoy that don't they? Sun was shining today, Mum can't have a few days just relaxing in the park after school with her kiddo can she? Nah we gotta give her summat to fret about.

I will fight back of course cos I always do, but ffs there must be more to life than this frigging merry go round.

Come on, this isn't Facebook. Proper info needed, boch.

Ah, brilliant cross post.

Sounds shit. Why does CP need to be involved?

Any problems DS has are as a result of my abysmal parenting Ellen - did you miss the official memo? snark alert

You have as much info as I do.

The bloke also queried DS's diagnosis on the phone (I had thought those days behind us - more fool me). I was taken a bit by suprise, so the only sensible thing I managed was to demand that it be someone from the disabilities team that come to the house on the grounds that it needs to be someone who understands the medical reports - as frankly the guy was trying to pull a "condescension special" on me, and I'm buggered if I'll be spoken down to.

Tempted to go into school all guns blazing tomorrow morning demanding answers - but know it won't help. I'll be as polite as I can when they visit, and let them write their report if it makes them feel good about themselves. What else can I do?

They'll come round, make ridiculous demands based on opinion and predjudice, tell you that you HAVE to do them and when you ask them on what basis they make those demands they'll tell you that if you don't know for yourself then they are even MORE worried about you.

Then they'll threaten to make a surprise visit sometime in the future to check you are carrying out their demands, and they'll go back to the office and close the case. Your sleepwalking equipment issue won't even be mentioned.

Original request for home safety stuff was made by diagnostic consultant - he wrote to SS Xmas time. It's been going back and forth since between professionals ever since. School decided to "help" and this is the result.

I'd forgotten about the original request having received an official letter telling me SS OT team weren't going to help. (No suprises there)

So sorry for the dribs and drabs of info. Need to calm myself down or I'll be no use whatsoever to DS while this works itself out. I'm not prone to dramatics but am currently fighting the urge to throw one helluva hissy fit.

I'm sorry, bochead. My first post should have had a with it. Glad you have demanded that the visit be by disabilities team rather than CP condescending guy. This was supposed to be making life easier...

Ds has just wet the bed again for the first time in 18 months .

It's my own darn fault as when the phone went I thought it was a friend calling to arrange a playdate after school tomorrow, so let him pick up the call. (Note to self - no more phone practice till this blows over). I was running his bath & wasn't expecting official calls at 7pm.

DS's phone manner was perfect - mine on the other hand . ooops!

Ask for direct payments when they're there. You might get them

If not, they'll justify the refusal with a report full of "marvellous woman, she's doing so well, doesn't need our help"

Outrageous Boc. I am sorry. It always seems like people are just there to make things worse and yet we the ones holding it all together.

Don't forget you have the mumsnetterati on your side!

Thanks all - I'm gonna need some Honks to keep up a cheerful front for DS.

I'm gonna devote the week to looking for work. With a wage coming in we'll have choices. Even for the land of nonsense this is daft.

Thanks Justabout. It helps to know that perhaps it's just a standard response rather than personalised iykwim.

Just changed DS's bedding for the 3rd time. .

All requests for help used to go through 'reception' in Hampshire, which meant child protection followed by core assessment then a decision on the children with disabilities team involvement.

A social worker I spoke to last week said that they've changed it now and if the person phoning gives enough information that indicates significant SN, the initial visit is done by the team.

A step forward.

Hampshire is often followed by other Counties, so there is hope...

lougle I that's the process that was followed last time - no CWD involvement was what they decided. It'll be the same this time, esp as the CWD OT has already said she won't help. That'll somehow get twisted round into being all my fault for my failure to consistently use lavender oil or something equally daft.