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Ages of dcs at dx and how long did process take??

9 replies

justine09x · 28/02/2013 14:13

I posted last week about ds as he had physio as he toe walks and they said he has sensory issues, he is 3 and I had took him to gp before as he is very hard work and hyperactive etc. I was fobbed off by gp as he is not in full time school but physio have made the necessary recommendations for referrals. Gp phoned yesterday to say he had emailed my ds nursery teacher (who is very supportive and says his problems are not a huge concern but definitely had certain markers for possible asd and is hyperactive and fully supports a referral) anyway gp phoned again to say he has been referred to community paed and I have a letter from occ health today.

Anyway I would like to know people's stories on similar children and how long the process has taken and if a dx was made? Also whether as dcs have got older whether asd has worsened or improved?

I thank u all in advance x

OP posts:
Crawling · 28/02/2013 14:21

Dd was first referred to SALT at age 2. The suggested a autism refferal at about 2:6. But I didnt react the best and refused. She was sent for a dignosis at 2:11 and got diagnosed at 3:6.

She has not got worse as such but her issues are becoming more evident as children around her develop at a normal rate and dd is developing much slower and over time has lagged further behind.

Catsdontcare · 28/02/2013 14:24

Ds was referred at 3 and diagnosed with asd 9 months later. In reference to your last question DS has come on in leaps and bounds over the last two years although he is still notably behind his peers in terms of speech.

lougle · 28/02/2013 14:26

DD1 was 2.9 when preschool said that she was 'a bit behind' and asked for someone to observe her.

She was 2.10 when she was sent to hospital because she fell over for no reason.

She was dx:
global developmental delay at 2.10
Epilepsy at 3.1
MRI abnormality 3.4

No clear diagnosis yet, she is 7.2, but she does go to Special School.

justine09x · 28/02/2013 14:30

Excuse me for being dim but what is SALT lol I keep seeing it on here lol
I always knew ds had quirks but now I pick up on things more like I thought he had excellent imagination playing but now I realise he's copying what he has seen in tv, he is very bright too bright for his own good lol, I am getting worried that they are going to say he's too verbal and loving but I only think he is loving for reassurance if u see what I mean? And he does talk a lot and will talk to people that are paying him attention but he is almost innapropriate, shoves things in people's faces and talks about things that he has just magically recalled from somewhere......I don't know I just don't know what they are going to look for. So it took just over a year for u? I suppose it varies and what are waiting lists are like? Xx

OP posts:
justine09x · 28/02/2013 14:33

And did u all go thru nhs? How did u find it? I know some parents on here went private but that's not an option for us. I just want to be took seriously and get any help he needs so he can use his brightness to his best ability. Sorry to bombard u all but u are all so knowledgeable I have been lurking for a while lol :)

OP posts:
Crawling · 28/02/2013 14:34

SALT is speech and language therapist.

Crawling · 28/02/2013 14:36

I went through nhs audiologist and SALT referred for autism assessments. But gp can refer.

lougle · 28/02/2013 14:45

When DD1 was taken to the GP, she sent us straight up to the hospital. We stayed overnight and left with appointments for EEG, ECG, 24 hour tape. We also had referrals for Audiology, SALT, OT, Physio, CT, MRI.

PolterGoose · 28/02/2013 16:16

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Message withdrawn at poster's request.

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