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What would you do? Treating or not?

4 replies

ComeOnYouTwo · 23/02/2013 10:14

ds2 first appointment for his assessment for AS is finally on the card. Meeting in a couple of weeks which is wonderful. But.....

We have been waiting for nearly a year for that to start and since then we have also done quite a bit of work with ds. A mixture of doing some short relaxation/meditation in the evening to help him relax and be less anxious, some diet changes (dairy and wheat free) and we have also gone to see a herbalist to see if she could help reducing the intensity of his meltdowns.
And of course, in a year he has grown.

All that seems to have make a big difference for him. His outbursts are really less severe and he seems to be able to express himself better.

But now I am worried that what we have done is going to play against him when they will start the diagnosis. Part of me knows that some issues are still very much there (he doesn't like transitions, social issues, no friends etc...) and nothing can 'cure' AS.
But then he also has less problems. Most of the issues are seen by us, not at school as he seems to withdraw and just goes quiet. So how on earth will they be able to 'see' what is going on if it's not as clear?

Someone has mentioned on MNSN that they have been told NOT to do anything that would alter their dc behaviour as it could affect the outcome, even though the issue was serious (Hitting sibblings).
So I am left wondering if we shouldn't just stop all what we have done in the last 10~12 months so ds can revert back and be assessed correctly. What do you think?

OP posts:
ComeOnYouTwo · 23/02/2013 10:15

Oh btw ds2 is 8yo.

OP posts:
zzzzz · 23/02/2013 10:45

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PolterGoose · 23/02/2013 11:31

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ComeOnYouTwo · 23/02/2013 13:04

Yes I know exactly what you mean re it would negligent not to do anything.... This is the thing isn't it?
What if what we are doing now doesn't have as much impact in a year? What about his quality of life (and ours/dc1 quality of life) during that time? And what if we don't arrive to a dx anyway.....

I suppose I am still quite raw on the lack of reaction from anyone around us because 'they just couldn't see the problem' and I don't want to get back there again.

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