Is PDA regognised

[sweetteamum]

I'm just trying to get an idea if PDA is recognised in my area.

We are in the St. Helens local authority and just wondering if anyone else has a diagnosis or who are they under for suspected PDA?

My son fits the bill and we've just ruled out asd yet are so confused why he has a lot of the same traits.

Is there anywhere you could pointe is to, that would be willing to help.

We are currently waiting for an OT and Paed assessment.

He's had a recent salt assessment and there's no delay. She also said during the assessment he was coming up with different ways of how things would go together and showing signs of various other things. To be honest, I've now had 3 people tell me he's not got the significant difficulties associated with an ASD

PolterGoose is that something that has to be done before asd can be ruled out? my Ds is under camhs asd team and he hasn't been seen by an ot or a paed, the team he is seeing has a clinical psychologist, speech therapist, and a psychiatrist I think.

ASD need not involve language delay. My DS never had any delay in fact as a preschooler he was probably advanced. He has never had any language problems other than very subtle social ones which were not really apparent until top end of primary. On a SALT assessment alone he would never have received a ASD diagnosis but he has.
Which is not to say that your DS could not have PDA as well as or instead of an ASD. Just don't let the profs jump to conclusions.

Worth asking on the PDA Contact Group site as I'm sure a poster is from around that area.
We had loads of professionals saying it wasn't ASD/AS to start with and had an Ados test that was also negative. The difficulties didn't go away though and became worse the older ds got. He is classed as very complex and we now have a HFA/PDA dx which has enabled him to finally get the right support after years of school difficulties. As others have said don't rule ASD out early on - I never did and we eventually got an answer.

NoHaudinMaWheest my son didn't have a delay either in fact I can remember having very interesting chats with him when he was 3. now he tends to lose children his own age when he is talking to them he seems to use very advanced vocabulary sometimes I will ask him what the words mean and he isn't to sure but the majority of the time he does know. It's not nice to watch other children look at him like he is talking a foreign language and then slowly they will begin to walk away from him.

Sounds like Aspergers to me. My Dbro's Aspergers was explained to me as "ASD without the Speech Delay".

Am I right in thinking that next year's revamp of the diagnostic criteria (DSM V) is getting rid of PDA, PDD-nos and others, and putting everything under the umbrella term Autistic Spectrum Disorder.

Might be worth factoring in ?

sickof you are half right. The terms which are in the DSM IV are going, aspergers, pdd nos and I think atypical autism. PDA isn't included in the 'cull' because it wasn't in the DSM IV in the first place. This is why it is so hard to get diagnosed, even when professionals have heard of it (I would hope most have by now) most pychiatrists can only make diagnoses from the dsm or the European version, the ICD 10. That's why you get diagnoses like 'autism spectrum, demand avoidant presentation'.

I actually like 'autistic spectrum, demand avoidant presentation'. Because it simplifies the diagnostic journey, but describes the individual child's difficulties. I think the DSM-5 change is along the right lines, although a lot of people do understand 'Aspergers' so I think people will always use it. In much the same way as people understand 'Dyslexia' which, too, can look very different in different people, but people generally know what kind of thing it is.

I tend to use Asperger's with the general public and ASD with professionals on the sometimes mistaken assumption that professionals will recognise that there is a spectrum and that it makes me sound more professional.