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Audiologist woes

4 replies

MummytoMog · 13/02/2013 23:37

DD had her follow up today. Last time she had glue ear, moderate hearing loss and a charming ear infection. There were two audiologists last time, let's call them Ms Great and Mr Rubbish. I had a fair amount of trouble understanding Mr Rubbish and Ms Great spent a lot of our appointment correcting him and his technique. So I was a bit disappointed to see he was the only audiologist this time, with an assistant to help engage DD during the tests.

Anyway, he was actually a lot better this time, but I walked in there knowing that DD can hear much better right now than she could eight weeks ago because she hasn't had an ear infection, a cold or tonsillitis since then. She does however have them regularly and my major concern is that we do not know how her hearing fluctuates and how much she has ears full of fluid. So I wasn't surprised when she did much better on the tests this time, or when the timpanogram showed a much better result for both ears. The fact that she has suddenly started following directions, using three word sentences and making verbal requests in the same eight week period sort of tipped me off Smile.

I explained that my concerns about whether her hearing fluctuates quite clearly I thought, and basically got told that it was improving and her hearing wasn't bad enough to interfere with speech development. Well not now it isn't. But what about previously or next time she gets a cold or tonsillitis? Because she still has a hearing loss in one ear, he said that we could come back in four months. Which is better than go away and never come back, but... So I was wondering about taking her to a private audiologist/ENT. She has mahousive tonsils all the time anyway, a history of chronic ear infections and she snores like a hog most of the time. Does anyone have any experience? Is it worth it, or should I wait and see what happens at the next appointment? I don't want to sprint into the private healthcare system and have unpleasant operations because I'm desperately looking for reasons for her to have a speech delay which aren't ASD related, but I can't help but feel fobbed off.

I also mentioned her recent and obnoxious sensitivity to raised voices as well as her inability to distinguish speech in noisy environments, and he did agree that she didn't appear to be able to hear noises as well if someone was talking nearby, but then he told me that was because she was ignoring it because she had lost interest. but if we stopped talking, she was responding again. ack. and then he told me there are three reasons for someone to be sensitive to loud noises - profound hearing loss, which she doesnt have, just one of those things that normal children grow out of , or in DD's case, she's probably autistic. A diagnosis he is of course well qualified to make because someone in his family has Aspergers. Sigh. I've disregarded that bit of the consultation, and it didn't make it into the notes funnily enough. What kind of sucks about that little gem is that DD was fricking amazing during the consult. She was interacting really well with the assistant, talking loads, following instructions and let them shove things in her ears without grumbling at all. She even read them a book. I stuffed her full of chocolate buttons on the way home Grin

OP posts:
bialystockandbloom · 13/02/2013 23:47

Can't comment about the audiology issue I'm afraid, not within my sphere of experience, but if she's got massive tonsils (all the time) and snores, I would definitely take her to ENT. My dd had her tonsils and adenoids removed a few months ago (she was just under 3yo).

Go to your GP and ask for referral to ENT - it's not a hearing issue so don't wait til the next audiology appt. Are you in London? St Thomas' the best place for this. We did it because I worried that if dd ever did get tonsilitis her tonsils would swell so much they might actually block her airways. Also the adenoids/snoring issue was causing some sleep apnoea. We waited about 4 months from GP referral to operation, on the NHS.

Your dd sounds like she's progressing very well Smile

Btw my dd also doesn't like loud noises (eg buses, drilling). She is NT. Whereas ds has asd and has no noise issues whatsoever. Go figure Wink

Handywoman · 14/02/2013 07:02

What was the extent of the hearing loss? My dd2 had a severe viral illness and a stonking great secondary ear infection aged 3yrs 11 minths which permanently blew her ear drums. So she acquired a hearing loss of around -40dB but by this point she was ALREADY language delayed (language level 18 months-2yrs chronological age 4years). We were (and still are!) forever at ENT monitoring hearing and infections. We had one school of though (school) who kept saying hear language problems were down to her hearing loss (red herring, look at the sequence of events) and ENT who said her hearing was not bad enough to affect language. About six months down the line we finally met someone sensible at ENT, a doc who finally took a pragmatic view: mild/moderate hearing loss is going to leave a language delayed child more vulnerable than one with no other issues. So she recommended a hearing aid on the worst ear. This really helped dd2 maximise her development of language. She wore it until the first eardrum was repaired.

I am a firm believer in looking at all the issues together (audiology and developmental) when figuring out what to do. I think your instinct is right that her hearing needs to be monitored closely (where I am this is fine through ENT). I agree you need a ENT referral to maximise your dd's hearing.

MummytoMog · 14/02/2013 10:28

Handy - that is exactly what I was trying to get across to him, and obviously failing. The EP was just like that when I was pushing for a hearing test, that there were other causes for the speech delay and that any hearing loss wouldn't be the whole story. But it won't help, will it! If she's already struggling to pick up language, then why leave her handicapped further by spending half her life listening to the world underwater?

Bialystock - I will take pictures of her tonsils for the next week or two and then go to the GP armed with photo evidence. When she had tonsillitis the GP was a bit horrified by the kissing tonsils dripping with mank (especially when DD choked and threw up mucous and bile on him) so will hopefully be co-operative.

OP posts:
salondon · 14/02/2013 17:21

Ditto Baily. If she is snoring or uncomfortable at night I suggest that you see an ENT. Private or otherwise, it's your decision. We went private because I have no patience with the Mr right types.

The grommets didnt help with her speech(I always held she could hear alright), but she generally felt better. And for the first time in 2.5 yrs started sleeping from 8:30-5:30.

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