FFS. Right, appointment went ok-ish.
She put me & ex under microscope, looked at the way we interact with DS3 probably so she can blame us!!.
Saw the pretend play he has now, seemed to ignore the fact that I have been working like a dog to get him to 'get' pretend play, seemingly ignored the fact that just 3 months ago he had NO pretend play.
Saw that he makes reasonable eye contact with her (of course he did, she wears glasses and he's obsessed with anyone in glasses, he's looking at the effing GLASSES not the person, if she took them off and put them on the table he'd show no more interest in her than he would a bloody door), seemingly ignored the fact that even the Paed was concerned about his lack of the contact just 3 months ago.
When she asked about my concerns, I mentioned the tiptoe walking, and she said "Well I haven't seen that", when he was walking right past her, backwards and forwards on his tiptoes. She DID see it 'a bit' once I had pointed it out.
She asked us about our concerns, went through our 'list'. She took notes.
She noted that there is a strong family history of these same issues.
Assessment is in May, for Autism, under the multidisciplinary team - 4 weeks of assessments in a group with 3 other DC's with suspected Autistic Spectrum Disorders.
NOW...the genetic test results...
That I was told yesterday she would bring with her...
She has told me that they are back, but that she cannot discuss them with me, and we need to see the 'doctor' so that the doctor can explain the results.
(I just want his effing karotype so that I can get DD and DS2 tested)
His next Paed appointment is in APRIL. I'm not waiting till then to hind out - that would mean that every professional would have the information about him over two months before me and his dad do. Surely that's not right?!
I'm going nuts here, because they won't test DD or DS2 until I have DS3's karotype, and whatever is 'wrong' chromosomally with DS3 is what's 'wrong' chromosomally with DD and DS2.
I NEED an answer soon - DD is almost 15, and I want answers long before there is ANY chance of her falling pregnant.
I've been 15 myself - in fact at just 15y10m, I was bloody pg with DD, I need these answers.
Why are they making me wait so long, and is there any way I can make the Paed (or geneticist if that is who they think we need to see) give us the results before April?
The SN HV obviously seemed to know the results of his genetic microarray tests, but won't effing tell me or his dad. We are his PARENTS. How do I make them tell us?!
She's also told me that they are going to have to do a risk assessment to see whether I can continue to take DS3 into the sensory room due to my epilepsy. They may say no. Which would mean DS3 missing out because of MY disability. But the SN HV was very quick to repeatedly point out that it would be to 'protect ME' , definitely not to discriminate against me.
I make a risk assessment on the likelyhood of me having a seizure in the sensory room every time before I go in. Sometimes I will sometimes I won't. They don't ever turn on the strobe lights when I go in there, and I'm fine with the fibre optics and the illusion box.
I kept it together, was well spoken and mostly knowledgable during the assessment, until the stuff about DS3 possibly not being able to to into the sensory room if their risk assessment seems it to be too risky. Then I started sniffling and having to hold back tears.
I don't give a shit if I miss out on something because of my epilepsy, like swimming. I DO care if DS3 misses out on going in the sensory room because of my epilepsy.
And it doesn't matter how many times the SN HV SAYS it's not to he discriminatory, it doesn't make it FEEL any less discriminatory!!
Argh! Fluffed it at the last hurdle because of my hang up about people not letting ME make my own risk assessments and decisions wrt my epilepsy.
[Idiot emoticon]