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Statement update! closer to good news!

8 replies

emmalou78 · 27/04/2006 12:27

Well, this morning the post man delivered a letter I didn't honestly expect to get, its the HUGE form from derbyshire LEA because they have agreed to assess him!

I know I'm still weeks away from knowing what help they'll offer, if any, it may well be piffle and I know I need to word it with a view to the fact he starts primary school in january, so any help and recomendations have to cover the transition, and I asume it will be a split resource betwen the 2 settings? Unless of course they decide to name a special school...

I have 6 weeks to do this form! wonderful...might take me that long to work out what to say, how to say it and how to realy labour the point without making him sound worse then he is on his worst day...

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Davros · 27/04/2006 19:52

Great news that they've agreed to assess. I'm sure lots of us will be able to help. I think there's been some other threads recently about what to say, how to say it and how much. My din-dins nearly ready so I can't have a look now, maybe someone else can dig them out?

Socci · 27/04/2006 20:12

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Message withdrawn at poster's request.

emmalou78 · 28/04/2006 12:23

the background questions were easy enough, I kept a note of everything from way back when I was first concerned, and keep a record of his behaviours at home, spent all monring at preschool making notes and getting the full lowdown from the playleader, and also scrawling the language nad playskills you would expect of an almost 4 year old from their dfes reference books!...

Its the how his needs should be met questions I'm clueles on, I've been warned we'll be lucky to get funding for an echo 10 hours a week, so the additional info section looks set to be another essay, the boy [bless his heart] has NO sense of danger and will copy things if he likes the response someone else gets for what hey hae done [and this is normally if someone has really hurt themself] he has a freakish pain threshold so needs someone with him al the time tomake sure he doesn't decide to climb onto a radtitor and for example fall out he living room window... he has no regard for crs or road safety, I'm currently training him on a wrist rein to walk to and from the primary school he's due to attend as of jan 07, he still leaps for the road and tries to look at any car he see's, I broke my foot last year retrieving him from the path of an oncoming paramedic vehichle [and did it stop, did it b*ggery].. what hsa really hit home though, above all teh rest of it, is his language problems, he jargonises nad uses less then 10 words meaningfully, which is baout what you'd expect from a 12-15 month old, he's 4 in july, and they can't test his receptive language levels, because cognitively he isn't at a stage where even basic tests are appropriate..

But i'm amused by 'what are you concerns?' ma I allowed to write, I am concerned that elijah willbe offered minimal support and expected to cope in mainstream schooling despite developmentally being aproximatley half his chronological age, that without the full itme 1:1 he needs his behaviour is goign t e directly affected, his stims will return, he'll regress back to that angry terifying little ball of fury who everyone told me was 'normal', worried that the system will fail him completely and he'll never be given the chance to progres bieng about 2 years old mentally.

I'm ever hopefull they'll recommend special school, theres a school about 20 miles away whihc is exclusively for ASD, they can go from 2-19 years of age, its n our LEA so we'd get help wit transport surely... though inthe pit of my stomach theres the love dread that stupid legislation and beuracracy is going to prevail and he'll get a note in lieu and basically be left ot deteriorate, unless I hock a kidney to pay for a private LSA... I need a cup of green tea with black currant I think... that or a nice soothing brandy!

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mixedemotions123 · 28/04/2006 14:42

Emmalou I know how you feel. We are going through the statementing process at the moment. My ds is an asd 7yr old, who is finding life and school an uphill struggle. I don't know what your little ones difficulties are, but his behaviour sounds familiar to my ds. We have just been told by his Psych that he is too intelligent to attend an ASD special needs school, but that he will not cope in MS without full 1-1 support. All well and good if the LEA take notice. Who Knows!!!.
Hope things work out well for you and your family.Smile

Socci · 28/04/2006 15:10

This reply has been deleted

Message withdrawn at poster's request.

emmalou78 · 28/04/2006 15:56

I'm armed and ready for a fight, but I hate the fact that I feel I might have to fight, ever the idealist I do feel that ALL children have a right to an education thats appropriate and tailored for them. It shouldn't be this mess of red tape and allocated funding that exists right now....

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Davros · 28/04/2006 19:46

YES, I say write it(see below)! This is your chance. Mind you, best see what everyone else thinks as its many years since I had to do this. You will be entitled to transport afaik.
"ma I allowed to write, I am concerned that elijah willbe offered minimal support and expected to cope in mainstream schooling despite developmentally being aproximatley half his chronological age, that without the full itme 1:1 he needs his behaviour is goign t e directly affected, his stims will return, he'll regress back to that angry terifying little ball of fury who everyone told me was 'normal', worried that the system will fail him completely and he'll never be given the chance to progres bieng about 2 years old mentally.

emmalou78 · 07/05/2006 12:54

well I went for it, and HAVE written that, right now given he has next to no suport we have nothing to lose...

They're going to regret giving me haf an A4 page to detail what I feel his SEN are, and how I think they can be provided for, thats now about 5 pages long...

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