Bit of background - My DS has a complex medical history which has led to a him having severe speech and language problems and therefore poor reading/writing, he has a marginal airway so tires easily, has poor concentration, confidence issues due to his communication difficulties and his general health is very poor - he has a compromised immune system so can become very unwell very quickly.
He's currently in Yr1 and right from preschool has had LEA funded IPF for 25 hours a week. This has provided 1:1 support for learning plus cover for him at play/lunch time. We were due to have a review in March in which I thought the funding would be reduced, expecting him to lose the play/lunch time cover.
HT took me aside yesterday as she has been informed that the council is removing ALL IPF funding from April for all children. Nothing has been said formally as there is lots of debate about the wording of letter as obviously parents are going to be outraged. But oh my god what am I going to do???
I don't know anything about statements as I've not needed to know, but I know they take forever to get in place. I'm also doubtful that DS would be eligible?? I just don't know. My poor baby, he's 5 and is going to go from 25 hours support to nothing overnight - and LEA haven't even had the decency to inform me!
I'm just so stunned at the moment, I'm trying to read up as much as I can so I know what I'm talking about but looks like there'll be no appeal process if its a council wide decision. Is getting him statemented the only way to get him support? Does anyone have experience in a similar situation?
His medical history is CHD corrected at birth (but left with vocal cord palsy), tracheostomy from birth to 3 years, decanulated but fistula remained open until 5 years, grade 1/2 subglottic stenosis ongoing, marginal airway will need reconstruction at some point, gastrostomy fed until 5 years (button removed recently), nuetropaenic and lymphopaenic.
Thanks for listening xx