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Here are some suggested organisations that offer expert advice on special needs.

is there any help available for us ?? , aspergers

26 replies

thriftychic · 25/01/2013 09:17

since camhs diagnosed ds2 with AS a few months ago , they have put us on a half day post diagnosis workshop and thats it .
it was ds2 aggressive , controlling behaviour that led us to camhs and tbh its more like ODD or a conduct disorder than typical AS

I asked camhs for more help as they appeared to be washing their hands of us now we have a diagnosis and all they have done is refer us to surestart , our local parent and family support . Their behaviour or parenting courses are aimed at typical children and they dont think their courses will help us ( i dont either).

all they could suggest ( they seemed to be clutching at straws) was to get on to school and get help there , thinking it was probably school that was triggering the stress . But , as it stands he doesnt have any help in school because although he hates going ( he says its pointless and boring ) and refuses sometimes when hes had a meltdown over something at home , he is doing ok in most lessons , has a few friends now etc . there doesnt seem to be anything to be done in school .
The lady had some knowledge of AS but seemed to keep looking for things that just arent there , trying to find AS issues when its just that he wants his own way ( I think)
e.g this week didnt want to go to school , ds2 said i should keep him off because of the snow . he finds any excuse not to go , surestart lady thought it could be the snow , sensory issues etc . i knew it wasnt . he refused to go to school in the end but later in the day was out in the garden enjoying THE SNOW.

but , at home hes flippping out regularly , smashing things up , hitting me , parading around the house taunting and intimidating us over seemingly small issues and then being upset vowing not to do it again .

we have tried rewards and consequences , tackled the worst behaviours consistently with written list of rewards/ consequences and stuck to it . IT DOESNT WORK .

we have tried identifying the triggers but it just seems to be anything he doesnt like , asking him to do his homework , telling him no he cant play xbox all day , needing to nip out when he doesnt feel like it or want to etc etc results in a shouting stressing boy who then flips out .

where can we go for help ? who can give us some behaviour management strategies that ARE going to work with an AS child ?

thanks for reading x

OP posts:
popgoestheweezel · 28/01/2013 17:00

It does sound a lot like PDA to me but we have known ds (6) has had it for the last two years and can't seem to get anywhere with a diagnosis, but just like you he's not too bad in school. Although he's clearly not happy he does manage to keep a lid on the anxiety, that is, until he comes home :)
Take a look at all those links that hotheadpaisan listed- when I first read the features I thought they had been written specifically for our ds!

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