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Keep thinking something is due to go horribly wrong!

1 reply

roadkillbunny · 22/01/2013 17:51

Everything has gone so well it is making me horribly nervous that something is going to go really badly!
I know how lucky we have been, I read what others are going through in regards to education provision, support and doctors and I can not get my head round the fact everything has gone so well and quickly for us, feels like the anvil is due to fall!

I remind myself that even though so much has been achieved in just 4 months it did take years of me banging my head against brick walls when ever I took it out of the sad before ds started school in September!

Things aren't perfect, there are things I know will need further attention but we have gone from the start of September when ds started school with SALT saying he 'just' had a speech delay and they wouldn't do anything to help until, their words 'his speech matured a bit'. Pre school had done allot of work with him on his speech (he was non verbal when he started aged 2.9) but had never, I discovered, put anything on paper or done an IEP (why I didn't think Pre schools did IEP's I will never figure out) and rather then flag, discuss or try to address his social problems chose to not tell me about them and when they did tell me (by putting it in his leaving report) made 'its so cute/sweet/quirky' comments.
So fast forward one term at school, a school I thankfully did know would care for him and maximise his great pottential due to my dd already being there.
Ds now has funding for 15 hours 1-1 and his TA is about to be recruited with his needs and personality in mind, he has weekly therapy visits from the SaLT support worker, in school OT is soon to begin to work on his sensory issues,
He has been referred to a paediatrician and seen one and had the report sent out! Not only that (I asked GP for referral last week of October, saw paediatrician 2 weeks ago) but the paediatrician read both the reort school sent ahead and the huge wad of documents and reports I took with me. She listened to all we had to say, did some vaccine assessments, noticed little things that had escaped everyone else's notice and I didn't have to bring my ASD suspicions up as she was already there.
Ds now has a dx of a. Sensory processing disorder as well as a speech and language disorder and agreed with my and dh's feelings that as ds has so much support already in place (or very close to being in place) that there was no rush for a formal ASD dx and we could afford to wait 6 months to see what happens with the high SaLT input. If a dx was required to get support (which the paediatrician acknowledge is sadly often the case) then she would have given a HFA dx.

To top it all off and in my book the best news of all, ds has a friend. Not just somebody ds sees as his friend but a friend who tells everyone who will listen that ds is his best friend.

There are some points the paediatrician stated that she feels point away from an ASD dx for ds that I feel are a little to stereotyped (ds has good eye contact most of the time and plays using (basic) imagination) that may need addressing when we see her again and I would be happier if ds had a statement to protect his provision encase our LEA decide to discontinue the small schools special funding programme that currently is funding ds. These things are not major though and can be overcome/achieved.

Something bad has to happen. It surely can't be this easy!

(Sorry for the long woffling, clear as mud post about nothing, just trying to shift the sence of impending doom and be happy and rejoice that so far our path has been smooth)

OP posts:
Ineedmorepatience · 22/01/2013 18:12

No roadkill, I dont think anything bad will happen. It sounds like despite a dodgy start from preschool you have found a good school who are doing everything they can to support your Ds. You have found a sensible paed who has listened and read about your Ds and you have found MNSN.

I hope everything continues to go well for you and your Ds Smile

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