Paediatric neurologist in uk

[takemehometoauntem]

My son has been referred to the above I was wondering if anyone had any experiences of the initial appointment? what info should I be armed with? I just want to be prepared I am not very good when asked on the spot questions my mind just goes all fuzzy!

Prob depends on reason for referral to what will be assessed ie physical or cognitive etc?

Always a good idea to take a list of questions/concerns as personally I find it hard to remember what I want to ask when faced with these kinds of appointments.

We saw a paediatric neurologist from Bristol a few years ago - he was bloody marvellous, lovely man, one of the best consultants we've seen over the years (and I wasn't expecting much).

And just ask anything that's bothering you. Our appointment lasted over 90 minutes, we had a paediatrician there as well and they spent time going through everything, and all our concerns. Really really good.

Thankyou for the replies. My son was refered after concerns about him acting out of character at times his breathing altered and he would stare and shake his arms then re-act as though he didn't know where he was after. Will I have to go through development history? Will there be any kind of screening tests before it goes any further? I have tried looking but just seem to be getting american info up all the time.

One of my siblings has had similar problems to the ones you describe but started in adulthood. She saw a neurologist who went through her history including and difficulties at birth. She had eeg and also a sleep deprived eeg. Turned out to be mild temporal lobe epilepsy but it appears to have resolved itself as she's been seizure free for a few years now.

Not seen a paediatric neuro, but have seen endless professionals with my 3 dcs over the years.

If, like me, you go blank when they start asking questions it's useful to prepare some briefing notes. My GP recommended this when my ds1 was referred and told me to send them to the paed in advance so that he could read them before the appointment. He didn't actually read them beforehand, but he did go through them thoroughly with us during the appointment and it was useful to have it all there in black and white.

We just started ante-natally, described the pregnancy and birth, any milestones we could remember, significant illnesses and some basic family medical history. Since then we've just added to it, so it's always up to date whenever we see a new professional and so far everyone has always seemed really grateful for it.

I am under a neuro myself and my first appointment consisted of history taking, a discussion of what I was there for and a basic neuro exam (things like reflexes, following a moving pen or finger with the eyes etc). I should imagine it would be similar for a paediatric appointment.

We had full history (although he had that as well as he had noted and ds1 had been under a paediatrician for ten years by then). Some examinations, some referrals

I usually write a list of questions, bullet points to jog my memory. The neurologist asked for info on pregnancy. birth, development, physical worries and family history.

I also found it useful to ask if there was an email address/phone number that we could call if we remembered anything or thought of any questions after the appointment.

Did you see Dr Mujumdar saintly? DS2 saw him a few times.

With DS2 he asked about whether there was any problems with the pregnancy/birth, if he'd been in scbu and when he learnt to roll, sit, crawl etc.

I would write down any questions you have and anything you can think of to clearly describe what happens to your son. Also ask family members if anything similar has happened to them because you will probably be asjedvabout family medical history.

No Andrew Lux, lovely man - really listened. We didn't see him at Bristol though, he runs outreach clinics

ok thanks ladies, now for another question my son is also under camhs at the moment they asked me to let them know if we get him refered ( which I have) will camhs work with the neurologist by sending their info or do you think it will be classed as something separate?