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Feel like I'm drowning here! It now looks like dd,15, has Aspergers/ASD also!

10 replies

Penneyanne · 18/01/2013 11:48

God,I feel completely swamped here.Having just about come to terms with ds,12,being dx with Aspergers 3 years ago it now looks like dd,15,is heading down same road Shock.
School want to refer her to an educational psych.as they have serious concerns .It has come to light only because she has been the victim of bullying lately and headmistress and year head have been involved with her a lot and now feel she has underlying issues.
Lately it has become apparent that what we thought was simple shyness is actually a crippling form of social anxiety and extreme shyness.I have been mulling things over in my head quietly and when I look back over her early years all the signs were there-she never liked playing with others,lined up toys,hated social situations and still does,odd interests of extreme intensity and so on and on the list goes.Yet,she would be completely different to ds.I suppose this is exactly why they say Aspergers presents completely differently in girls.

Over Christmas,myself and dh came to the conclusion that dh is almost certainly on the spectrum also.
It now feels like I am on a different road to the three of them - running parallel beside them...like on a motorway or dual carriagewaySad.
Flippin heck,I cant take it all in.A few months ago,it was only ds was my main focus/concern etc and now its the whole bloody lot of themSad.

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PolterGoose · 18/01/2013 15:48

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lisad123everybodydancenow · 18/01/2013 16:38

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Ineedmorepatience · 18/01/2013 17:46

Hi, penny I feel for you it sounds like you have your work cut out.

I agree with lisad that girls with asd are very different to boys. I have 2 girls on the spectrum, 1 is diagnosed and 1 isnt. They are similar in some ways but not others.

Good luck and I hope her school come up with a plan to support her.

Penneyanne · 18/01/2013 17:47

Thanks ladies. Thats interesting lisa but no I'm not near Herts.I am much further south. How would your girls present lisa if you dont mind me asking?

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Penneyanne · 18/01/2013 17:50

X post ineed.Thanks.Do girls usually have the sensory issues also?.Ds rocks and flaps etc but dd wouldnt display any behaviour like that.

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Ineedmorepatience · 18/01/2013 18:26

Dd3 rocks and flaps but I am pretty sure she would never do either at school.

One of the main differences between girls and boys with asd is the girls ability to mask their symptoms in social situations eg at school.

One of Dd3' strengths mentioned in her passport at school is her ability to develop her own coping strategies. This is a great skill of course but it makes it very hard for people who dont know her well or understand her to realise when she is struggling.

Sadly she learned this skill when she started school and hated it. She was very sad and distressed to the point of being physically sick but she learned to deal with it for the 6 hours a day that she needed to.

I am kind of guessing this is what your Dd has done.

Good luckSmile

lisad123everybodydancenow · 18/01/2013 18:57

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Penneyanne · 19/01/2013 12:40

YesIneed I think that is probably whats been happening all along.
lisa dd sounds exactly like your 10yrold.Your girls are certainly completely different arent they?
PoltergooseI will definitely look at that book.
Thanks all of you.

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Mollyweasley · 19/01/2013 14:22

We have a mixed Aspie/NT family and I've just finished reading "Aspergers in the family" by Liane Holliday Willey. She writes about her family and the strategies they have in place to all live together and understand each other...very useful...

Penneyanne · 19/01/2013 16:26

Thanks mollywill have a look at that also.

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