it's Friday, is there no fred??

[devientenigma]

if so, where?

Well, our week has been everything that would be expected for the first week back at school. I'm sure it's easy enough to fill in the blanks. I must rescue a bottle from upstairs before the kids go to bed.

and hugs to a few people here, I think. Lots of poorliness and upset :(

Congratulations, commiserations, jubilations...I think that covers you all

Oh dear, sorry to hear all the sad news this week - not a great start to the year so hope things improve. Glad there's still some good news though.
Mixed bag here really. LA agreed to name the specialist independent school so we can start transition soon . It will be residential which will be a bit difficult to start with but we took ds for a visit today and he was very positive so that's a good start.
On the negative side I tripped and fell down a high kerb today and fell heavily onto my wrist and knee so have bruises and grazes all round .
Still waiting to hear from old school about the exclusion disciplinary hearing . They are meant to send all paperwork and witness statements 5 days before the meeting which has to be held within the next 6 days but have not contacted us at all yet .

lougle your news makes me feel my life is ok
Sorry to all others who are having a crap new year (too many to mention individually)
Life here trundles on. On the upside have been passed proficient by GOSH to administer DD's weekly infusions at home (actually my tutor was lovely)
DS seen by orthopaedic consultant and has suggested a selective dorsal rhyrostomy?? due to his svere stiffness
Have a peaceful weekend my friends

Yes sorry to hear the sad news, esp lougle.
We've had reasonable week, DS settling back in to routine and happier in routine than he was out of it.

Had illuminating week - paid for private slt assessment and ds come out with much more positive scores than nhs gave us a few weeks ago and optimistic for long term.Turns out nhs slt based her opinion on a single 5 min subtest (full test would have taken 2-3 sessions). On nhs test ds scored more than 3 years behind (he's just 6), on private slt he scored only 18 months behind in some areas. I don't doubt the true picture is a combination of both but annoyed we were given such negative news without explaining how limited the testing was.

Also had OT report just before xmas on ds motor skills which found no real problems, they were slightly behind but aba to 'keep doing what they are doing', left no exercises or suggestions at all, said school report 'no problems except he can't hop' (so classic over anxious mum scenario). This week took ds to a free trial of a dance class and within minutes i had a list of 6 motor skills he could not do - really basic stuff like he cannot kneel down at all, cannot roll his head / cannot turn it left or right when asked etc.

Which is just more nhs money wasted - both slt and ot will have spent 3-4 hours coming to visit ds in school, writing report etc just to misinform us - turns out me watching him for 5 mins doing a dance warm up alongside peers is more insightful. Whole system is total bollocks.

Lougle I have you all in my thoughts.

(((hugs))) for all those who has had bad weeks also or if you prefer.

Blimey lougle, that's a hard one . Sorry for everyone else with bad weeks too, especially the poorliness in the sign, badvoc and moose households.

2old, I have a friend whose dc had that op, so pm me if you want. And good luck next week to everyone who's been struggling with the usual stuff (back-to-school, house, professionals, education-wrangling etc).

We have good news re DLA renewal: 2 years at same rate [sigh of relief].

Great news Maria.

I also meant to thanks those for wishing me, yesterdays meeting is the turning point. Thanks.

Devient, I really hope so!

Thank you everyone for kind wishes - It's very early days. Treatment next week, I think.