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Here are some suggested organisations that offer expert advice on special needs.

I can officially be here now!

6 replies

blackeyedsusan · 08/01/2013 20:42

ds has his diagnosis. ASD with, i think, spd (i will have to wait for the report to get that bit clear)

we have both been behaving like he has asd for a while, but now it is official and I can officially glare at tutters for not knowing about hidden/not so hidden disabilities. Grin (flicks v's at those family who say he is "just" naughty)

OP posts:
EllenJaneisstillnotmyname · 08/01/2013 20:47

Congratulations, I think? Well, you know what I mean. Look after yourself over the next few weeks, it's quite normal to feel crap even when you expected and wanted a DX for your DC. Onwards and upwards, how is school?

MovingOnNow · 08/01/2013 21:02

Oh I was looking for your post about feedback from ADOS. Hoping, well not hoping but anticipating being in your shoes soon. Oh yes, glaring at tutters, that would feel good. I said to my mum I just want to be able, on very rare occasions, to be able to say, he has ASD, now do one. I probably won't but it would be good to know I could if I wanted to! How did you feel when they told you. I don't know if I will get upset or not. I can't imagine that I won't get a diagnosis but I am a bit freaked out at the thought that I won't. My appt is only for half hour, how long did yours take?

blackeyedsusan · 09/01/2013 00:21

i was relieved that we knew... and it was definite because, well i kew anyway, but needed it official.

today has been wweird.. i look at him and think that it is strange that something has changed. not that he is any different, but that his label is different.. it is very odd. then there is the officially I have a disabled child... but he si the same child as on sunday

ados took an hour. the appointment took an hour, though we went in late and came out a little early.

they have to send out the report within 5 days, maybe next monday at the latest if working days.

freaked out at the thought i will not get a diagnosis was how i felt.

OP posts:
MovingOnNow · 09/01/2013 12:44

Thanks. Were any further appointments or referrals suggested or is it a case of yes he is, now bye bye! I just don't know what to expect.

coff33pot · 09/01/2013 13:36

I am glad that you now have answers :) Well done and now you can move forward to getting him the support he needs x

everynameistaken · 09/01/2013 13:43

hi blackeyedsusan

We got our diagnosis for DS (ASD) on Friday. There was an overwhelming feeling of relief from us too. However, I blubbed all weekend and was a complete wreck. I was just like you though, worried that we wouldn't get a diagnosis and then it would have been a 'what now?'

But, like others have said onwards and upwards.

Interestingly for us, school had said he should not be assessed. We paid privately, and the questionnaire the school filled out, when analysed by Dr Keen, showed very, very clear ASD 'trait's for want of a better word.

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