ok, not SN DC but adults..............

[devientenigma]

a lot of adults who went to special school etc are not diagnosed. Is there something that could be done to find out if a diagnosis is present?

sorry it's vague, TIA x

Don't know if this helps
DD 7 has Emanuel Syndrome this was diagnosed at birth but only discovered in ?2003 and was told there were only about 250 in the world. I do not believe this I am sure there are many more who are labelled as non specific learning difficulties (horrible phrase)
Is it possible to do chromosome studies
Good luck

I think some tests are relatively new, e.g the micro-array, so the advice would be to ask for tests that were not available previously.

If the patient or next of kin is happy to tell the GP about being at special school for learning disability, a full annual check-up is usually offered on top of normal care. Which encourages them to take time to answer this sort of question.

IQ tests etc are often in education files rather than medical ones, but a read through the old notes can sometimes be helpful, especially if they go back to early childhood

it's for DH, the SW thought it might be a good idea to get him assessed to then prove why he takes up just as much of my time etc. However a few month on they now wouldn't mind DS took away for a long hospital assessment. It came out last night DH has also had this as a child too. DH has no diagnosis apart from him going to SS, his speech is unclear, however at 7 he still wasn't speaking and they often thought he was deaf. We also have another 2 adult DC who went to SS and never got a diagnosis, although my youngest who I post about has an obvious disability. Just wondering if there is anything similar between them all and who would find out. TIA x

You could ask to be referred to genetics. They could look at your history, family likenesses, etc., to see if there are any features which stick out to them.

lougle has put my thoughts brilliantly she has put it in a nutshell

Wot lougle said. Worth looking in his old GP notes first in case they have any useful letters eg from 1970 paediatric review (educational files would be even better but probably long gone).

Anyone who has a learning disability counts as having a 'chronic condition' so can get an annual full check-up and review at the GP (ie over and above the normal service- similar to the extra care given for asthma or diabetes)

thanks

He also does have diabetes which I have to keep on top for him as well. Now he's having to reapply for the job he's had for 28 year as they want 10 redundancies, which obviously I will have to help as far as I can. etc etc

I know every mother/wife has it hard thats not my gripe. It's just with them wanting DS took away to be assessed, then DH having been throught something like it and having him and 2 DS's not diagnosed, It got me wondering......