I'm not surprised,but sad that my family are

[RinkyDinkyDoo]

Ds 5.9years and diagnosed ASD at 3.9years. It was the annual meet with paediatrician today. We turned up with no agenda, were met by a different paediatrician(3rd one now)have no idea what her name was,she's never seen DS beore,did the usual questions to us and her scribbling notes, did height and weight and then "oh he's so lovely" she actually said "and what do you want me to do?" so we said try and sort some sensory OT and that was it. It won't happen as he's been on the list for 2 years and the people who deal with OT in special schools haven't got anyone trained in it.
Dad phoned and said how did we get on, related and he was like well what now?
Am crying now as usual after speaking to profressionals,, as well that's it, he's got a label,he's got a statement, he's at special school and there's fuck all else. Dad,who is so supportive, seemed to think it was like a broken leg, get other professional opinions and we'll fix it- so wish it was.

Community paediatrician annual appointments are a really a glorified version of the annual 'well child clinic' check-up that health visitors and school nurses used to do. Useful as a way of picking up treatable issues like glue ear, poor growth through faddy eating etc, and very handy for complicated dc with half-a-dozen specialists each interested only in one little bit. Often not much help for healthy dc with ASD.

However, if she writes that DS needs sensory OT, and the NHS officially says they can't provide it, then you'd have a very good case to get it added into part 3 of his statement at annual review. Which would mean the LEA finding and funding sensory OT to visit school.

Thanks Moose, you've summed it up beautifully-not much help for healthy dc with ASD. And yes, we'll look into getting it on the statement.
Always come away from appointments feeling rubbish

Thanks zzzzzz, think it's more that everything seems ok in our little world, and when you see the professionals it's the reminder that your child has problems and the reality and uncertainty of it all. And yes, the drs have no idea and mainly no answers to our questions.