I'll ask here, first - migraines?

[ouryve]

DS2 is 6.5, with ASD and non-verbal. He's hypermobile with low tone, though that mostly only presents problems when he's tired or poorly, now.

This has happened twice in less than a month. Yesterday, he came downstairs after sleeping later than usual in the morning, covered with fresh vomit. He was hot, pale and shivery and not at all himself. It was obvious through the day that he had a splitting headache and he spent a lot of the day catnapping and burying his head.

He ate a few simple carby foods through the day and drank normally. Even though the forehead thermometer measured 39C in the evening, and he was incredibly cuddly and wanting ME to cuddle him, he woke up this morning as right as rain and hasn't even started flagging into the afternoon.

He did exactly the same thing 3 weeks ago. No one else in the house caught anything off him.

I'm asking here first, rather than the main boards because I have a hunch that this isn't completely unrelated to any of his existing neurological "stuff". It may never happen again, but our GPs have never been the easiest to communicate with so I need an idea of what tree to go barking up if it does. Do these episodes sound like they could possibly be migraines or maybe some other neurological event?

Vomiting could easily be related to the migraine/headache, as well as sensitivity to lights (burying his head?).

But I don't think it could explain the high temperature though.

What GreenPetals said.

handy xx

That's what I was thinking too. It just seems odd that he's had exactly the same symptoms twice, without giving anything to anyone else. It's almost as if there's a temporary blip in his temperature regulation and the fever itself has triggered the vomiting rather than being part of a viral infection.

I'm thinking that if it does happen again I need to march him to the GP and try to explain that something odd is happening and I don't believe it's just a virus or something he ate. I'm hoping that it doesn't happen again and I'm just overthinking.

Dd1 had an awful habit of developing a temp for no reason at all. It would last a day or too, and then disappear. It finally stopped when she was about 7.
She gets horrible headaches too.
We never gotto the bottom of it

My dd2 spent last Thurs spiking high temps for a whole five mins at a time on and off. Most bizarre..... she likes to do things differently!! It's definitely viral though.

hw xxx

The instruction manual they give us with these kids is a bit crap, isn't it?

Ouryve, has he ever had an MRI? I know two brothers who were dx asd, and it was only when one developed 'migraines' that they did an MRI, then of his brother, and discovered it wasn't asd at all, but a separate brain condition that was mimicking asd... Completely off the wall, I know.

Obv if he's had an MRI, then discount all of the above.

He hasn't, madwoman. I don't think it's that off the wall, but we have ASD running right through the family, affecting every single male on my mum's side. His is far more severe, though and he loses skills faster than he acquires them.

Leonie - If it does keep happening and it does look like it's something other than viral, I have no idea how we could treat it, anyhow. Google "how to give a cat a pill" and that's our experience of giving anything to DS2. It doesn't matter how we do it, we end up wearing it. Probably at the very least, I should ask for some paracetamol suppositories so we can bring his temperature down.

Anyhow, he has an appointment with his paed in about 10 weeks. She wanted to sign him off last year, but I didn't want him to drop out of the system. If there is another incidence of this, even if I get no luck out of any of our GPs (there's one particular one who I will ask for because he actually listens - he's young, bless him!) I can discuss my concerns with her.

My son gets bad headaches and feels sick occasionally too, he is also hypermobile with asd. I have heard kids with hypermobility are prone to headaches , perhaps that's what's causing it?

I'm hypermobile and get some horrendous headaches from my neck, but not with a fever and I'm only ever sick when I'm pregnant or eat mackerel!

Hi Ouryve - I've been a migrane sufferer (tunnel migranes where I temporary lose vision) since i was about 8, and the pain can cause vomiting. I echo what others say about asking your GP to refer your DS2 for an MRI.

The good news is that migranes can be controlled; over the years, with changing diet and learning what my 'triggers' are I'm mostly migrane free without the need to take any medication (although I am subject to a life of bad coffee, as my main trigger is caffeine!)....

Not SN at all but my friend has migraines and so does her DD. Her DD's triggers are chocolate, tomatoes, oranges, peppers. She is also dairy intolerant which causes severe stomach aches. She is 6 and has been much better since her mum has been controlling her diet. My friend's migraines were headacheless, which caused a long delay in Dxing them. She just had visual disturbances and fainted a lot.

Oh yes, my friend has the same triggers but also coffee and red wine.

Well, I'm actually relieved to say that, this time around, he was contagious. DH has been off work sick, today and now has a stottin' headache.

Of course, poor DS2 never get chance to catch his breath. He's bitten the inside of his cheek and kept on biting the inside of his cheek and it's a bit of a mess, now :(