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Help, what's like dyspraxia that isn't?

33 replies

SantasHugandRollintheSnow · 13/12/2012 19:09

Also posted in special educational needs.

Just that really.

Ds1 has a long list of issues which point to dyspraxia (will type list below my post so people don't have to read it if they don't want to).

He's being referred for SALT through school but after a chat with his teacher we agreed it was a good idea to get a referral for dyspraxia testing.

Went to the dr today who is referring him to a paediatrician as the list is so long to rule out any other causes. She skirted around the issue and didn't give me any indication of what "other things" it could be.

Does anyone have any experience with this or should I get back on the case as the referral could take a long time?

He's 4.8 and the very long list is below.

The symptoms are:

Noticed by school;

Finds it difficult to sit still for long periods of time, often fidgety and only recently able to cross legs.

Used to get very emotional when asked to try and put his own coat, shoes etc on. This has improved but can still get frustrated.

Moves at speed across classroom flapping hands. Unsteady on feet and bumps into classroom furniture.

Been referred to SALT as he has difficulty following instructions, understanding complex sentences, he is difficult to understand and his speech sounds are immature (missing out verbs).

We have noticed (some may overlap with above)

Gross motor skills all behind, still cannot skip, hop on right foot (can on left) or pedal a trike/bike.

Potty trained v. Late (3.7 yrs) and still has frequent wetting accidents.

Fine motor skills behind, cannot tie a scarf, do up or undo buttons, struggles with zips only learned how to dress recently (since August for most, October for coat, socks and shoes).

Movement issues, very clumsy, poor spacial awareness, fidgety, arms flap when excited, falls off chairs.

Speech behind, very shrill high pitched scream when excited, cannot vocalise what he wants.

Behaviour, still prone to tantrums, cannot use knife or scissors, struggles to accept new things or changes to routine, very sensitive but highly emotionally intelligent.

Sorry for the epic list!

OP posts:
HugAndRoll · 24/02/2013 21:27

An update. We had his school nurse results back and amongst other things, he failed the hearing test. We have an audiology appointment Tuesday and our paediatrician appointment 15th march. Still haven't had our SALT appointment through though.

HugAndRoll · 15/03/2013 21:25

Another update. His hearing is excellent so its not that.

He had a paediatrician appointment today. Physically he's fine but he has the physical control of a 3 year old hence the clumsiness and not being as agile etc as his peers.

The paed ruled out ASD as his social skills are very good but he has a comprehension delay. His speech is in the normal range but he's not processing what he's told like he should be and doesn't understand what people are telling/asking him.

This is why he gets so frustrated when plans are changed. It takes him longer than we knew to get his head around the old plans and when we change them spontaneously he has no clue why or what we're doing. Same with instructions. He doesn't process it when we say, e.g pass me the remote from the sofa. This is why he says where? What? I don't know? I'm tired (default get out clause). Where is it? Etc.

Does anyone have any experience of this as I'm feeling very confused.

HugAndRoll · 15/03/2013 22:13

Bump

HugAndRoll · 16/03/2013 09:28

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tacal · 16/03/2013 09:44

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Ineedmorepatience · 16/03/2013 09:51

Hi hug, I think you really need that SALT referral as quickly as possible. Is there any way you could go private?

Just out of interest how many times has the paed seen him and what kind of assessments did he do?

beautifulgirls · 16/03/2013 14:13

Have you looked into auditory processing disorder (diagnosis via Great Ormond Street) as one possibility to explain some of the issues?

HugAndRoll · 16/03/2013 21:39

beautiful no I haven't but will have a look.

ineed just one paed assessment. He asked ds a lot of questions and saw how he responded. Asked me what my concerns were, teachers concerns and had read his medical records (was under paed care as a baby). He did some physical checks and tests too. We were in there for 1hr and now need to wait for salt.

The freaking out over a deviation from a plan happened today. Both ds are staying at pil tonight (planned). On the way dh said mil was going to sainsburys on her way home from work so we offered to take ds1 to McDonalds or Burger King for a treat. He said no he wanted mil to cook him dinner like she normally does. Explained it would be late etc, he still wants mil dinner.

The way to mil house involves a roundabout. You can go left (the way we normally go) which is a shorter way or right to go down a main strip with shops where McDonald's is. We went right in case ds changed his mind. He freaked out saying we needed to go back, we need to go to mil, were going the wrong way, tears and shouting etc. he's like this until we pass all the shops and are nearly at mil house.

She's still out and fil is out so we let ourselves in. Cue tears and screaming (inconsolable) again because she's not there and he's staying at her house and not with us etc. he was genuinely upset not having a tantrum. We explained again she's at sainsburys but he was upset until she got it then was fine.

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