Convinced she has CP but all anybody says is it is too early to tell

[Lakette]

Reading through some of the threads here, it seems as though I am not alone but doesnt stop me from being frustrated
SInce my dd was born (she is now nearly 6 months old) I have said that there is something 'different' about her but I keep getting told that I worry too much (family etc)
When she was about 10 weeks old we took her to see an eye consultant as I was sure that she wasnt seeing and despite various protests by others unfortunately my concerns proved to be right - since then her sight does seem to have improved (although it has still a long way to go) and the consultant is convinced that she will continue to improve
I am now concerned about her general development - She doesnt hold anything in her hands despite grasping out for stuff, seems to want to just stare at her hands rather than hold toys and moves her arms and legs in a really stilted way - I know you shouldnt compare with other babies but she is so 'different' to others of her age ie she doesnt seem to even recognise me and is still so much a baby whereas they are all becoming little people and I am convinced that there is something else wrong with her
She has got an appointment with a peadiatrician next week but I am absolutely convinced that my mothers instinct is going to be proved right again and I just keep getting so upset
All family and friends keep saying is that it is because of her eyes that she cant grasp but I dont think it is - All the neurologists and HV's say is that it is too early to tell
SOrry that this is so rambling but I guess I would love to hear from any of you that have had similar experience of waiting for a diagnosis of CP and when they actually commit

I know exactly how you feel. Right from the moment that my ds was born I thought there was something 'different' about my ds- I was told that i was being silly by friends and family and that they could see nothing wrong with him. I desperatly tried to take their thoughts on board but there was always something there niggling at the back of my mind.He just seemed 'different' to other babies but i knew that all babies developed differently. I was concened about my sons eyes also in that they would often wander but I was told that babies eyes 'can be all over the place until about 6 months' by my G.P. I eventaully convinvced ny HV to refer my son and he has now been diagnosed with a problem that will effect his development. im not at all saying that this will be the case with you, I was so scared to find out for sure whether there was something wrnog but now I know (and after a few days of grieving and getting angry!) I now feel ready to move on and help my son.

You must trust your mothers instinct- I knew from the very start that I wasnt going to have a 'perfectly normal' little boy but now we know what wre dealing with, I can look forward to being with my son instead of spending every minute I have with him worrying and comparing hm to other babies.

I hope it works out well for you but if it isnt the news that yuor hoping for then youll be able to move on!

I am another advocate of 'mother's instinct' esp if you have other children or a lot of experience of handling babies. It took me months to get my DS (now 5) referred to a physio who immediately confirmed my fears.. that his development was not as it should be.

CP is hard to diagnose except in 'obvious' cases (ie extreme prematurity/obvious brain damage) and my DS still does not have a diagnosis per se... but he is now described as having 'dystonic cerebral palsy'. I was way ahead of the doctors on this though.. not because of any medical knowledge but a refusal to stuck my head in the sand and not having to worry about being wrong and having a lawsuit thrown at me!

Sorry if this is not want you want to hear. It may well not be CP.. but it is possible that there is a developmental problem going on.

SJ x

the feelings you describe sounds just like how i felt when dd was little. I was convinced that she was "different" even though she was being seen by the pead every 3 months(i think) it still took till 9 months for him to tell me she had cp.
I think they wait to see if they will catch up.
I do hope your fears are ungrounded. I too agree that mothers instincts are nearly always right. I felt very alone as even dh didn't feel anything was wrong and thought I was writing her off. for me it was relief when I was told as I just knew.
I do hope you get your answers soon and remeber we are here for support.

Again echoling all the others have said.
I knew there was something wrong with my dd when she was a couple of months old and i was told that i was paranoid.

She is 2 this month and in Jan this year was dx with hemiplegic CP, i kept on at them since last year, trust your instincts, this has proved me right with both my kids, my DS has AS and i always knew there was something not right and it has took until this year to have it recognised.

HTH

Keep battling away make a nuisance of yourself but don't get downhearted. My son is 3 now & does have mild CP recently diagnosed but is so much better than the physios ever thought he would be