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Nearly 3 years in and I can't handle this existence any more

27 replies

Herecomestheninkynonk · 26/11/2012 16:10

Please guys, you've been so good in the past. Please say something to get me through this.

DS nearly 3, complex medical & behavioural issues. He screams, hits me, pulls my hair, scratches my face for hours on end - been going on since noon today. As usual my face stings from the cuts, my scalp is sore and the bald patches are growing.

I have nowhere "safe" to put him other than his high chair where he has been screaming for over an hour, he won't stop now until he sleeps tonight.

I have 4-6 hours sleep a night cos he sleeps so bad despite medication. We spent months in NICU after his birth and people kept saying things will get better. They haven't. We can't go out as he gets so upset, friends/family are scared of his medical needs and behaviours so feel very alone.

We have all the professional help you can think of, but it's me sat here with the screaming child over and over. I don't recognise myself physically or mentally. I have no connection with the woman I was before he was born. My life is purely to help my husband care for DS. DH does so much but I still can't cope.

Really need some kind words. Can't see for the tears.

OP posts:
SilkStalkings · 28/11/2012 18:18

Also, you are totally allowed to feel sad and resentful about it all. None of us signed up for this when we got pregnant, it is sad for us, sad for our kids and sad for our NT kids too. Google that 'welcome to Holland' poem, says it all. I read it last week for the first time and spend the night howling, sometimes you have to open the self-pity box an let it engulf you.

CloverVegan · 30/11/2012 14:29

Music?

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