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Toddler - autism / asd concerns

11 replies

LittleMissSnowShine · 21/11/2012 20:05

Hi all,

My DS is 27 months and for a while now I've been getting a bit concerned about whether her might have autism or ASD. I work with teenagers, a few of whom are affected by Aspergers and autism, so I feel like I have a pretty good handle on recognising the symptoms displayed by older children / young people but it's a very different ball game with a toddler!

He is very sociable, he can meet your eye, he tolerates cuddles (tho he will only actively seek out a hug maybe once a day for about 10 seconds) and, in a way, he interacts quite well (though non-verbally) with other kids when he's out and about, with my friends kids or at his childminders. So far, so good.

However, he doesn't talk. He has a vocabulary of maybe up to 50 words but he only uses a handful of them and he doesn't even use those consistently and he never strings words together into a sentence. The health visitor saw him last month and she has referred him to a speech therapist and also to have his hearing checked because he had some issues around glue ear last year. DS also doesn't really communicate as such - if you ask him to do something a lot of the time he just kind of ignores you, so it's hard to say whether he's ignoring you because he doesn't want to do it or because he genuinely doesn't understand.

His temper tantrums are ferocious, even being used to working with teenagers with very challenging behavioural issues (the hard nuts who have all been kicked out of school and are in trouble with the police / addicted to drugs etc - I am genuinely not inexperienced at dealing with challenging tantrums etc) I am still often afraid to take DS out of the house on my own because it is exhausting, there's always a screaming match and it's just very hard to handle because he's big for his age and very strong and he kicks, smacks and screams the place down. Even with DH or my mum in tow, taking him to Tesco or swimming or anything is a disaster a lot of the time. He doesn't do a lot of imaginative or role play, a bit with his toy cars where he makes car sounds and says beep beep. He also gets OBSESSED with things, like watching videos on my phone and literally wants to do the same thing for hours and hours on end, going crazy if you try and distract him from it or get him to do something else

He's a really bright kid and understands how everything works, he's great at putting puzzles together and it's very hard to pull the wool over his eyes and he really loves music and books. He's a really funny, sweet little thing about half the time, a normal toddler some of the time and an uncontrollable frustrated seething mini monster the rest of the time. I got a score of 6 on M-CHAT (www.autismspeaks.org/what-autism/diagnosis/screen-your-child) which means, apparently, an elevated risk.

So should I be concerned? What (if any) should my next step be?

OP posts:
LadyMaryChristmas · 21/11/2012 20:10

This really does sound like normal toddler behaviour to me (apart from the speech thing). I wouldn't be concerned, it's far to early for you to tell whether he is on the spectrum or not. To be honest, and with the best will in the world, we can all see traits in those we love if we look hard enough. I have moments where I just can't be arsed to sit and chat to people, it doesn't mean anything. You need to relax and stop worrying.

LittleMissSnowShine · 21/11/2012 21:51

Its hard to be relaxed when your two year old shouts and screams but hardly says a word :-/ he gets frustrated and i dont want to just be totally laid back and let it become a real issue for him without trying to get him some support

OP posts:
Ineedalife · 21/11/2012 21:57

Hi Littlemiss and welcome to the board,

Firstly it is definitely not too early to tell if your child has ASD.

Many people on this board have known from a very early age that their children are on the spectrum. And gut instinct is amazingly accurate.

The Mchat screening is highly thought of on here although I personally have no experience of it.

I would recommend keeping a diary of any unusual/challenging behaviours, what triggered them and how you dealt with them.

If you are worried about your LO go to your GP and get a referral to a developmental paediatrician. There will be a waiting list so do it soon and then when the appointment comes around if you are not worried anymore just cancel.

Hopefully someone else will come along and add something else helpful

Good luck and keep coming on here for support and adviceSmile

marchduck · 21/11/2012 21:59

Hello LittleMissSnowWhite, there are many positives about your DS in your post, but also a few things which might be concerning and are worth getting checked out.
It's great that the HV has already referred him to see a SALT and for the hearing test. Hopefully this will either confirm that your DS is developing within the norms for his age, or if this isn't the case, the SALT will refer onwards if they have concerns. Likewise with the hearing tests.
You probably already know this with your background, so apologies if I'm stating the obvious, but it might be helpful to work on your DS's non-verbal communication and attention skills. There's a brilliant book by the Hanen Organisation, called "More than Words", which I read about on this board. it's really good - it is aimed at children with ASD, but great for any child having communication difficulties.
Hope you don't have to wait too long to see the SALT, and all the best to your DS and you.

marchduck · 21/11/2012 22:02

x-posted with Ineedalife - and I also agree about keeping a diary/list of your concerns/behaviours. Take them with you to your appointment with the SALT. Maybe give your HV a ring to see how long it will take to see the SALT. If it's going to take a long time, ask your GP for referral.

Needingsomeadvice · 22/11/2012 00:47

Hi LittleMissSnowWhite

I understand your frustrations. Just over a year ago I had concerns about my DD in a similar way. She was 22 months. In fact I posted on behavior/development forum even earlier and had a lot of people saying I was worrying too much along with some helpful replies. We went down the road of hearing tests etc and were referred to a paed a year ago...DD was diagnosed with ASD a couple of months ago.
Obviously it is not bo und to happen with your DS but just wanted to say no it isn't too early. This age is ideal to check him out as early detection might well lead to a better prognosis.
Hope you get some answers soon. Feel free to PM me anytime.

lisad123 · 22/11/2012 00:47

Nothing jumps out to me as Asd that couldn't be passed over as normal two year old behaviour.
His social skills sound good which is reassuring.
It's not too young to see Asd, dd2 was seen at 2 and told likely autism and dx at 3.
I agree keep notes, and go with your gut

ProcrastinatingPanda · 22/11/2012 00:53

There is a test for ASD for toddlers, a simple one of about 6 questions answered by the parent and another 6 or so answered by the health visitor or GP, I can't remember which. I think this test shows who needs further assessment?

I'll have a look for a link if I can find it.

ProcrastinatingPanda · 22/11/2012 00:55

I found it:

www.paains.org.uk/Autism/chat.htm

LittleMissSnowShine · 22/11/2012 07:51

Thanks everyone Thanks

Panda - I did that test on another website which scored your answers at the end, and we got a score of 6 which is apparently indicative of an elevated risk of asd...

Marchduck - thanks for the book recommendation, i'll def give that a go. I got DS a Sookie and Finn dvd a few weeks ago and DS does quite like it but I cant say I've seen any improvement in his speech so I think non-verbal comm skills might be worth working on - I'd resisted doing it before because I was concerned that it might delay his speech further but obviously his speech is already delayed so its important to give him other strategies for communicating

And thanks to all of you for sharing your experiences of getting dx for your DCs. It was actually a girl im friends with on fb whose 5 yo DS was diagnosed 2 years ago and she has been posting a lot of stuff on fb recently and I realised (to my surprise) I could relate to a lot of it, that has made me reconsider whether despite DS's sociable side, he also has some ASD characteristics. Its good to know that these kind of instincts can be accurate - I'm def going to start keeping a behaviour journal, pretty much anything can trigger DS's tantrums but if I was able to figure out a better way to avoid these or communicate better with him then they might be easier to deal with. Thanks again, Wine for you all

OP posts:
marchduck · 22/11/2012 09:53

I had forgotten about Sookie & Finn! I bought that as well. It only lasted a few weeks before DD broke the DVD player by ramming it in... It didn't have any great effect on her speech but she was interested in it and it got her attention, so it was worth-while for that alone.
One of the things which can help with toddlers with communication difficulties is to keep all your language to them extremely short and simple. With my DD, my first reaction to her speech/language delay was to talk to her/at her/around her all the time. It didn't work and probably just confused her. What worked much better was to cut my language to her way back; just one or two words, and to try to get her to make eye contact when I said something to her.
Hopefully someone more knowledgeable will be along to correct me on this if I'm wrong, but I think the purpose of working on very basic communication (rather than concentrating on speech itself) is to help the child to find ways of communicating and to help them see the benefit of communication.

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