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What happens next? What do I need to know before appointment?

8 replies

smokinaces · 03/11/2012 16:38

Just had our appointment through for DS1s ADOS appointment. (what does ADOS stand for? Autism Disorder something?)

History briefly:

Foundation Stage profile said he completed everything but his social side - which was that of a 3-4 year old. As a parent I had noticed the difference between him and his brother and peers, which is becoming even more evident 15 months on

Saw Paed last October, who said "DS has significant difficulties in his social communication and interaction skills. Development assessment today showed his skill level was normal in all areas, however his hand and eye coordination skills and performance skills were better than his locomotor and personal social skills"

SALT was seen in July for a Social Communication Diagnostic Assessment. He did the CCC 2 and his scores were 59 for General Communication Composite and -30 for Social Interaction Deviance Composite. They have written " The scores therefore borderline suggestive of autistic spectrum disorder but his Social Interaction Deviance Composite fell in the abnormal range. This profile can be frequently seen in children with Asperger's Syndrome" They also wrote "From observation and parental report it is evident that DS is a complex little boy with significant difficulties in respect of his social understanding and communication".

So this report has gone back to the Paed, hence the appointment on the 22nd November for his ADOS appointment and the 28th for my feedback.

What should happen in an ADOS appointment? What kind of outcome am I looking for?

I have joined some groups, and am fairly sure he has Aspergers from various traits he has and managing his behaviour. He is 6. But I'm now very nervous about what happens next - that I may be brushed off, that I'm pushing for something I shouldnt. I get a mixed response from teachers and parents as to his behaviour (some you can tell blame me and parenting and say there is nothing wrong) and I cant help but doubt myself.

Just wanted some advice really!

OP posts:
zzzzz · 03/11/2012 16:58

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smokinaces · 03/11/2012 17:07

The letter says the first appointment is for DS for another assessment, the second one I am not to bring him and its just to discuss the outcomes of the previous week.

I'm just trying to figure out what they are going to do, so I can give him some kind of prewarning about how room layout will be etc, timescales etc. I've started telling him already we will be going one afternoon after lunch etc.

The wine and chocolate I can do. Daily.

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ArthurPewty · 03/11/2012 17:08

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smokinaces · 03/11/2012 17:17

Do you think?

This may sound silly, but I'm worried they wont.

Friend of mine went through similar timescale to me. I dont know the outcomes of her DSs assessments, but I know his seem more academic delays. They said he had autistic traits but there was nothing to diagnose him with. So now she's in limbo - her DS clearly has some additional needs but not sure what.

I'm convinced he has got Aspergers, but dont want to dig my heels in when I have no real experience of it myself. I dont know what the borders for the CCC2 are, whether he's on the edge or anything.

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zzzzz · 03/11/2012 18:18

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PolterGoose · 03/11/2012 18:39

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smokinaces · 03/11/2012 19:31

Ok, all I will say then is we are leaving school early that day. Simply as otherwise I won't even get him there.

What does ados stand for?

And thank you. Your replies really help.

OP posts:
kmummy · 03/11/2012 19:42

ADOS is meant to be the 'gold standard' for testing autism. My son doesn't understand receptive speech so there's no way I could of prepped him. I found it really interesting and showed me even more how much he struggles.

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