my world has ended.........

[devientenigma]

...........sitting here sobbing, don't know how I'm going to cope

lol, know those exactly Rinky, this is just different. Theres so much conflict around DS between the profs and the only ones on side are the GP (known DS from 2yo, cardiologist (known DS from birth) and SW, 2 are going, 1 is leaving. SALT, physio and OT won't even give DS a look in now even though he needs them.

Just which GP is gonna give us the same service as the one leaving. It's a very sheltered, isolated, unpredictable life we lead. She is on 1st name terms with us and is on the other end of an email and jumps when needed.

Unless we can get another empathetic GP we may as well say we have no GP.

think what I'm saying is, these have also fought as long as me to try and get DS what he needs.

Oh devient i really feel for you, i totally understand why you are so upset ((((hugs)))). I had much same experience ds had same social worker for 7 years she was amazing only person to understand our needs, she then got moved due to cuts. My new worker is absolutely hopeless, not got clue, ds been in hospital 10 weeks now and not had one single call to see how he is, how we are coping how we are managing etc as hospital is 3 hour drive each way, and i also have other 2 ds to care for. DS been unwell for coming up a year now been in/out hospital from january and not a single call other than will i cancel your respite service cos ds not using it WTF?? On top of this the other amazing person is his sense scotland worker who takes him out for 5 hours every 2nd saturday.... went on maternity leave new worker not great, not got clue what ds needs, likes and not much willing to try and find out. I really hope you get a smooth transition and the new people you are assigned to are able to help with your situation. Try and stay positive (easier said than done i know) hopefully things will work out ok. xxxx

Oh that's not trivial, we all understand how important things like this are.

When one of ds's ABA therapists left last year I cried and cried , and tbh still haven't really got over it, she was amazing and I know that no-one else will probably ever be able to help us so much. People like this who really do make a difference are so few and far between.

Hopefully the GP will give a thorough and understanding briefing to her replacement. Obv nothing will make up for the history and relationship built up between you but hopefully her replacement will be a good'un

Hugs Devient that is definately not nothing that is a whole lot more worry you dont need xxx

That's definitely not nothing devient. When it takes so long to finally find someone who 'gets' it, why would you want to loose them.

Aargh. So sorry . DS's dr went on longterm sick and my first thought was 'hope it's not life threatening, we need him'.