Consultant is observing my daughter at school..

[queencat]

Hi

I posted some weeks ago, I recently went privately and obtained a diagnosis for my 7 year old who has ASD, possibly dyspraxia and ADHD.

The school have been quite unhelpful so far as aside from her writing issued continue to tell me they 'don't see a problem'

The consultant paediatrician who I saw I'd now going into the school on Friday to observe my daughter. I'm really concerned that they are now going to revoke her diagnosis and the school will continue to tell the paediatrician they don't see there is an issue,

What can I do? Can I ask to be in the meeting? My daughters new teacher excuse my French appears to be a right bitch and when I try to open up a conversation about my concerns looks me up and down like I'm a mad cow!

Thanks lovely ladies!

Sorry for spellings on my phone!

I think the paed would be quick to see through their denial of the issues, particularly if they have already diagnosed. I would imagine revoking a diagnosis would be massively unlikely. School is only part of the picture.

You might find the school staff actually try to pretend they are offering her support that you know they are not. The visit might put the wind up them a bit and make them start fawning over you instead .

Have you spoken to the paed about your concerns about the school and their attitude? Must be worth pre-warning him/her.

I have told them that the behaviours are not at their most obvious at school. Upsetingly the school have suggested in their reports that she is unhappy because of her home life! You can imagine how shit that makes me feel!

OMG, that is exactly what happened to me and Dd3.

Is there any possiblity of you finding another school for your Dd, I know that sounds extreme but if they are not prepared to support you trying to help your Dd they probably wont support her if she gets a Dx.

I moved my Dd3 at the end of yr 3 and she has been so happy and has made so much progress. The staff are supportive and she got the Dx she so badly needed within a term of being there because they told the psychiatrist the same story I was telling.

Sorry if that is not what you wanted to hear

I have emailed the consultant saying that the school are unwilling to be very helpful and I await her thoughts on it.

I thought I had a diagnosis now I'm doubting it. How do I know if I have a diagnosis or not?!

I would be confident that the consultant will be aware of schools acting I this way. My concern was also like you, that their reports would not support things, however I would believer hat if he saw asd when he diagnosed her, it's not suddenly going to go away... even if she does hold it together at school.this is common. I bet he see a lot more and they get put I their place! :)

I really can't understand the school's reluctance. It's not their bloody fault!

It's slightly depressing when it all comes down to money.

Sorry queencat I didnt read your OP properly, you said you have a diagnosis from a private consultant. If you have it in writing then you do have a diagnosis and it is up to the school to put the correct support into place for your child.

IME though some schools will still not do what they are supposed to do and you might need to apply for a statement which is a legally binding document and they have to comply with it.

Alternatively you might want to take the path I took and move to a school which want to support children and dont need to be forced

I have a report that says she is displaying behaviours consistent with ASD but the OT can diagnose dyspraxia.

Now I'm concerned this is not a formal definitive diagnosis. It's all do bloody confusing! However the report went to the GP who then made the referral so am on a waiting list,

Hmmm, I am not surprised you are confused. The fact that it says Behaviours consistent with ASD but it doesnt actually say Queencats Dd has a diagnosis of ASD means that it is open to interpretation.

Try posting a new thread with a title something like Please read this letter and tell me what you think. Then copy and paste or type as much of the letter as you can without giving away personal details and I am sure someone on here will be able to tell you if it looks like a diagnosis or not.

Good luck

this is here we are at the moment with ds... (reception)
he is not displaying the more obvious signs of asd at school, though his consultant said that she can see that he is displaying enough behaviours (in clinic) for there to be further investigations. his new pead/consultant is going to do a school visit too. I am worried that the head is going to blame it all on ds's home life and the fact that there as dv in the family and mother is obviously crap.

sorry that does not sound supportive and all me me.. but it is trying to say that you are not the only one going through the same process and it iss bloody terrifying.

Thank you. The school know my partner left me and I have been a little er 'unstable' however, the consultant noted in the session that she did not make eye contact was very poor etc.

the report concludes by saying and I quote

'x appears to have overlapping neuro developmental difficulties with features of ADHD, DCO and ASD. This is supported by evidence fr her EEG however we need further information when from the school before we can confirm'

So I'm basically being held to bloody random by the school!

Should I ask to be involved in school meeting?

ADHD by definition is in more than one setting. Eg school and home, swimming, beavers, holiday club might be prepared to give a report?

ASD is 'pervasive' ie not only provoked by one type of thing. So can be inconspicuous at school, but must disrupt more than just family life. Never having any outside life cos a dc can't cope would count.

DCO tends to be spotted best by OT/physio.

She doesn't go to a holiday club just started at brownies. But too soon there I guess.