Dyslexia - bottom 1%

[Anthea1001]

Hi my 8 year old son has been diagnosed as in the bottom 1% of children with Dyslexia, I would like to hear from anyone with similar diagnosis, he shows no progress with reading and I wondered if I am wasting his time perservering, with this diagnosis will he never actually be able to read anyway?

Yes, probably about 10 Statemented ('pure', ie with no other issues) dyslexic children in a school of 1000.

There is a specialist learning support unit who have teachers who do outreach. It is dangerous to assume that all schools and LAs are the same. And foolish to assume that every school's SEN budget is small. Schools should be held to account; it is parents' tax that pays for schools and children should be given all support possible.

So 1%?
In your opinion how many should be statemented due to their dyslexia?
of course all leas are not the same but I have experience of 3 and our
last one had a policy of not recognising dyslexia.
The sen budget for my sons school is tiny.
To be fair to the staff, there simply isn't the money to provide interventions for all the kids that need it.

Yes they should!
Sigh.
But they aren't, are they?
My son has never had any 1-1.
No specialist interventions other than what I do at home.
It's how it is.....
For the vast majority of parents with kids with sen.

I have had to fight and fight to get my son's schools to adhere to his Statement. But they have always done so in the end. I know it's not always possible and it certainly hasn't been easy BUT I think the attitude of 'don't bother with schools cos they're crap' perpetutates the crapness, iyswim. If parents complain and fuss, schools have to provide more support and upskill staff - no school likes complaints and most WANT to do their best.

I would say that the right children are Statemented at my school due to dyslexia. One or two stagnate at School Action Plus until an on-the-ball teacher or parent pushes it, but even they do get 1:1. Secondary better than primary IME. More specialist knowledge.

I agree wrt primary...it seems they are very reluctant to bring in outside agencies til KS3 in this LA anyway. I am happy that my son is now happy at school, but his improvements are down to the various different interventions we have done, not his once weekly phonics group....