Please share your day to day living with your Aspergers children

[MorningCoffee]

We are fairly sure this is the route we are going with dd, waiting at the moment to be referred to see a paediatrician.

I would love to be able to read about the little things your children do differently or the daily battles you face with your children.

Also can i ask once referred what happens? what do they do/say and how do they come to a diagnoses.

Sorry for all the questions this is all very new to us and am trying to understand more.

Thank you

Dd3[9] likes to do things her way, she has rules around eating and routines. She copes better with visuals than verbals.

She cant conversation share and is hilariously black and white.

She is very bright in some areas and loves singing, she learns and remembers song words very easily.

She copes well in mainstream school now she is in the right school and has the right support.

She was diagnosed by CAMHS using a DISCO assessment by a psychiatrist. The process took 3.5 years and was difficult due to lack of support at her old school.

The complete guide to aspergers by Tony Attwood is a good book that you can dip in and out of and I would recommend keeping a diary or your Dd's issues/difficulties, what causes them and how you deal with them. This will help the proffs to see what you are dealing with on a daily basis.

Hope some of that helps and good luck

We are heading in this direction for dd2. She's 3. The day starts with her refusing to wear many clothes as she doesn't like buttons, she controls the house, the tv, her older sister everything! It's tiring and I'm worn down! Been waiting for an ados test since December

Oh yes the controlling, how could I miss that out of my reply. Dd3 tries to control everything all of the time. It is fear and anxiety that makes her crave control in her life but it makes her very hard to live with and these holidays have been exhausting.

DS2 is a lot older 15... (I describe him as an Aspie, tho diagnosis is Autism and moderate LDs)
He likes every day to be the same. Predicability is key, otherwise he is very anxious. He is passive most of the time, very anxious to be a good boy, needs absolute rules and obeys them to the letter. Gets massively stressed when others don't.

He is very chatty but his conversation is a one way download of info.. on his obsessions, and he has always preferred adults and is bewildered by his peers. He goes to SS but also attends a learning disability base in mainstream (it's a joint site) and has done very well there. He didn't talk until he was 5.

He has a memory for certain facts and statistics which would probably be classes as savant, yet at 15, can't tie his shoes, or eat without needing his face wiped. He still believes in father Christmas.

He is adorable but will never be independent...

Chundle this is my dd exactly, she rules the house, she controls everything, she gets bad anxiety, we start in the morning with her clothes, she is so precise, the seam on her socks have to go across her toes or they are not right, she will only wear certain clothes if she puts it on and it doesn't feel right or has a button in the wrong place its coming straight off. She is the same with her hair.
Her school clothes go as follows -
Knickers fine
Socks seam MUST be straight across top of toes, wont move until this is done properly.
T-shirt top all buttons must be done up.
Skirt has to go over head then t-shirt must be pulled down under skirt tight so no ripples in t-shirt.
Cardigan has to go over head all buttons done up, then she will undo the bottom 2 buttons.
Cant brush her teeth first thing as the smell makes her sick, this has to be the very last thing she does before going out the door.

Generally it can be very stressful, i try my hardest not to get frustrated and to understand dd i really do but its exhausting.

She is struggling at school with everything, just gone into yr 2 she can't read hardly at all.
School says she can not process information, she is majorly clumsy(same at home) she has no empathy (she does with me and dp, but no one else) she does not do eye contact, she struggles socially.
She tantrums like a 2 year old and no is not in her vocabulary!

Dd will constantly repeat a question over and over and over again even though i have answered the question, she will keep repeating.

She still sleeps in our room, she will not sleep in her room, tried everything!

She is however a gorgeous, bubbly,energetic,adorable little girl, i love her dearly i just don't like to see her struggle and want to do all we can to help her.

I am sure there is so many other things i could list, i have to admit i do get exhausted from it all and i do feel sorry for my ds because she does take all my attention and i cant help that it seems.

Thank you for sharing some insight into your children its great to read.

Dd controls everything she has to even control ds, where he sits in the car, what food he can eat, if he does not do what she says she gets angry and frustrated and tantrums saying to him you have to do it, its hard and hard for ds.