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Here are some suggested organisations that offer expert advice on special needs.

Would just like to know I'm not the only one.

10 replies

2712 · 30/08/2012 10:31

I'm not really looking for advice as such, as I don't think anything will help really.
Would just like to know how others cope.
DS1 has ASD (dx) and has real problems socialising with other children. He gets wound up very easily and lashes out.
School have been really good about this and have worked with him and us to put strategies into place to limit this behaviour as much as possible.
However he has managed to upset every single child on our street over the years and this has resulted in the whole family being ostracised by the neighbours.
It has reached the point where I cannot trust him to play outside anymore.
Just feel so sad and low atm and need to know I am not the only person out there with this problem.

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Vagaceratops · 30/08/2012 12:42

I didnt want to read and run, sending you a Brew. I dont have any direct experience but I will bet you are not the only one.

EllenJaneisnotmyname · 30/08/2012 13:21

Not quite the same, but I've been trying to think what to do for DS2's (ASD) 13th birthday and have realised the only friend I could possibly invite moved away 3 years ago. Only 20 miles or so, but in 3 years he hasn't made a single new friend. Sad

zzzzz · 30/08/2012 13:30

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ouryve · 30/08/2012 13:52

Mine can't play out, either. DS1 isn't very road aware (he tries but fails almost disastrously) and would probably carve identical scratches into everyone's car. DS2 would simply run away.

2712 · 30/08/2012 19:04

I know this may sound very wrong, but I feel better knowing it's not just me.
Thanks.

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ArthurPewty · 30/08/2012 19:34

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moosemama · 31/08/2012 12:55

It does help knowing you aren't alone and your thread has helped me too.

I have been feeling really bad because ds1 (10, ASD) hasn't been about to go out to play with his friends this summer. We have bumped into them wandering around the village several times and seen them in the park (fortunately I have a 3 year old dd, so I have an excuse for being in the park at the same time and it doesn't look so much like I am 'taking ds1 to the park' iyswim).

He sees them walking up to the park and down to the shop from his bedroom window and I see how sad it makes him. Sad

He isn't 'road safe' - would and does step into the road in front of cars if I don't stop him. He's also not 'stranger safe' and add to that too trusting of his peers so vulnerable to being lead and bullied (been horribly bullied in the past) and I just can't risk it.

I had to let him and ds2 go to the toilets on their own in a cafe for the first time ever yesterday and I was on pins worrying about them. I had to give them a talk about not talking to strangers etc and it was another punch in the stomach to realise that I was expecting his 8 year old brother to take care of him.

Also feeling bad because the last week of the holiday has been taken up with me having a broken foot and various other illnesses/health problems that mean I haven't been able to take them out myself. A week of pyjama days and we are all tetchy and climbing the walls. Fortunately his lovely, lovely best friend's mum invited him over yesterday afternoon, so we all got a break and things are slightly calmer today.

zzzzz · 31/08/2012 14:04

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intothewest · 31/08/2012 17:31

Hi.All the kids in our close play out the front except my DS.He just can't be left unsupervised and doesn't 'get' playing (and can't ride a bike etc)

I felt a bit sad for him earlier. He was playing in the garden on his own and I could hear some children having fun and playing together.

What I do is to invite friends over here to play or to go to their houses
sometimes...but this is not often.

2712 · 01/09/2012 11:08

It really does break your heart to read stuff like this, doesn't it?
Just have to hope that as he gets older and hopefully matures, things will get better.

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