I can't put my finger on it - but I am still not happy with ds2 (5) dx

[LargeLatte]

Just mentioned it on an older thread but think it is worthy of a new one.

I'm still not happy with ds2's dx of dyspraxia.

What should I do now?

I have just changed GPs, so maybe I should just start again at the beginning and talk it through with her?

Does the NHS have a special spot in hell reserved for mothers who continue to make a fuss?

And is it important to get the dx correct or is it OK to just focus on the IT exercises since that is addressing the practical problems.

What do you think he has? ASD? The symptoms can look very, very similar but ASD does tend to attract slightly more support and it's very possible to have both.

No - I don't think there is any social or communication aspect to his problems.

He cannot make his body do certain things that he should be able to - but is skilled at others. The number of trips and falls has really decreased but he still describes his legs as going wobbly and finds drinking from a cup really difficult. He can't really write his name or numbers despite hours and hours of practice - his pencil grip is very weak.

I think I am starting to worry because its getting near to going back to school, he will be in Year 1 and I need to begin trying to get him at least an IEP (still not in place) - so the stress will all start up again.

Also bit down as another school mum has just had a pop at me over FB for having an excuse for everything because Clarks recommended he wears boots to accomodate his insoles, and that's not school uniform compliant, so she was basically saying I was making a fuss I guess.

Just wish it could just be me and him sometimes then none of this other crap would matter.

Buying school shoes today was awful as he was so obviously different to other kids, took ages, and we were sent away without any shoes anyway.

Sorry rambly, tired and really fed up now.

So maybe not dyspraxia if there's no social interaction or social communication elements. No problems sequencing etc? 'Just' a physical issue and/or developmental delay? TBH, so long as he gets support and interventions for his difficulties, the reason for them is less important. The problem is more if anything needs to be done differently if the cause is different, which I obviously don't know. Have you voiced your doubts to the paed? Or have you only seen an OT, as they usually DX dyspraxia? New GP, new referral?

I've not voiced doubts to anyone medical yet. I think over the holidays I have noticed more how the problems affect him.

I think I will see our be GP and voice my concerns to her. It won't hurt and it might help me get my thoughts in order. And I'll ask for a physio referral too.

LL I have PM'ed you...I hope thats ok.

Perhaps ask for piedro boots? That would avoid non-compliance accusations for a start.

Does he have hypermobility syndrome? Wobbly legs, problems writing often seen in hypermobile kids too. What are his insoles for. Geox do a black/ white trainer with lots of depth works well for my sons insoles.

Seen the other thread Latte and think that you need to go back to paed and express concerns.
I am also trying to see if there are other things at play with my DS1 who has a dx of dyspraxia.
Trouble is dyspraxia is co-morbid with so many other things and a lot of paeds attribute symptoms imho quite randomly.
DS1 has dx of dyspraxia, SPD, hypermobility and IBS. Who is to say that the IBS is, or isn't part of the dyspraxia, who is to say it isn't the hypermobility or the SPD. I'm trying to get to the bottom of it too.
Yes, I think we are on an NHS 'not again!' list - but tough!
I have had more results going via managers and PALS than I have had going via medical professionals. The latter seem to think they have a definitive, cast in stone opinion, the former that you might sue the trust, so are far more pliable.

You can get a referral off an old-fashioned GP by saying you don't really feel comfortable with occupational therapists diagnosing dyspraxia,

as you think his muscles and/or brain are playing up, and you want a proper doctor to see if he has another neurological problem underlying it....

Just wanted to say thanks all for your input. As we have recently changed GP surgery because I heard this practice is very good with kids, I think the best thing for me to do is talk it through with new GP to make sure we are accessing all the help he needs.

Thanks all for your input, it really us appreciated.

Hi do you know if the Occupational therapists were sensory processing/ sensory integration trained as this is not part of the basic training! I am an adult with Dyspraxia but... I actually think (since I was lucky enough to recieve some training in SI) that it is a sensory integration problem, ie sorting out balance, touch and body position sense in the brain and then the other senses too it might not make sense see www.sensoryintegration.org.uk for more info.