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Here are some suggested organisations that offer expert advice on special needs.

4 schools, 3 addresses, 2 tribunals, 1 large debt..........

80 replies

StarlightMcKenzie · 20/08/2012 11:05

We did it!

Final Statement arrived this morning, naming the independent special school ds needs.

And to top it off ds asked dd this morning 'Why do you like to make friends?' and then 'How do you make friends?' which is both heart-wrenching but also very very positive.

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PipinJo · 20/08/2012 23:33

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StarlightMcKenzie · 20/08/2012 23:36

Yeah Pipin, probably stimming Grin

It's amazing watching baby tbh. His development at this stage is pretty much purely behavioural. ASD or not, there is NO-ONE better than me for his preschool years. Shame I took so long to learn that with ds.

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dev9aug · 20/08/2012 23:45

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PipinJo · 20/08/2012 23:47

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StarlightMcKenzie · 21/08/2012 00:03

Oh, I thought you lived somewhere else dev! Feel free to live next door by all means Grin

I have no aversion to HV's especially but am keen to avoid being in too many systems, databases, or on anyone's 'caseload', and HVs have nothing to offer us.

After a year of begging for a referal somewhere for ds I finally got one with the HV being open enough to tell me that she had explained in the referral to the paed that it was just for my peace of mind. I got a working diagnosis at the first appointment.

I was then summoned to a developmental check by the HVs for dd when she was 18months as she was 'at risk of autism' as ds' sibling. I turned down the appointment on the basis that HVs clearly have no ability to see a clear case of autism. They were also over-involved in dd's development because her weight was below the 50th percentile.

I went to a HV-led breastfeeding clinic just recently to ask about the referal pathway for ds2's tongue-tie as feeding was very painful. They didn't have a clue what it was, didn't check latch or look in mouth. When I got a bit tearful (as had moved mountains and travelled a fair distance on public transport with all 3 to get to clinic), the HV told me that I had a lot to deal with and suggested that I must be feeling very fragile at the moment and that I MUST call the clinic in the next week or so, so that they could give me support.

I told them that the support I 'needed' was what I had busted a gut to request from them, not something different that they wanted to 'provide'. I told them that I actually thought I was very strong, and that strength had come from realising eventually that no-one was ever going to help us, that I had to get on with things myself, as I have done the last 3 years.

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StarlightMcKenzie · 21/08/2012 00:08

Haven't figured out the logistics Pipin. Not starting this Sept, but next year hopefully if I can get onto a course. Planning to exclusively bf ds for 6 months and yes, it may well mean travelling to Bangor weekly, and whilst one solution is to get my very supportive DH lactating, I doubt he would agree to that.

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dev9aug · 21/08/2012 00:20

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StarlightMcKenzie · 21/08/2012 00:26

Oh that's just great news. Really really lovely to hear.

And love the crazy 'solution'! The stories on here are truly inspirational!

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PipinJo · 21/08/2012 00:28

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StarlightMcKenzie · 21/08/2012 00:36

I've got a year to plan for it. I need to not do much for a year and focus on my kids.

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dev9aug · 21/08/2012 00:55

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justaboutiswarm · 21/08/2012 10:54

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appropriatelyemployed · 21/08/2012 23:17

Wowza!!! You go girl. So pleased for you.

tryingtokeepintune · 21/08/2012 23:54

Great news. Well done. Am so glad.

moondog · 22/08/2012 03:15

It's good news about the diary.
We could talk about sharing some solid data from our end if it helps.
So pleased to hear you are thinking of tacking the MSc.
It will be plain sailing for you and you will ove it.
You are always welcome chez Moondog if you need a bed for the night as you well know by now I hope.

AgnesDiPesto · 22/08/2012 20:03

Been away for a few days and what better news to come back here for!!! So pleased for your family. You will never be the same, even when you win the battle scars are still there, but it is worth it. On the plus side I still get a perverse thrill every time I submit an invoice and the LA has to pay it Grin.

Toppy · 22/08/2012 20:15

Star !!!!!!!!!!!! Thisis the first time I have logged on all holiday and your post was top of the list.
MASSIVE congratulations - I feel weepy with relief for you despite you yourself not even wobbling after everything you have been through. A truly great result.
See you in a couple of weeks x

StarlightMcKenzie · 22/08/2012 20:19

Aw, thank you Moondog! Don't know that they'll have me yet or whether we can afford it but it's a plan for now and I like it.

Agnes, I never got to beat my nasty LA into oblivion. I'll not have that satisfaction and it doesn't sit comfortably. And I have no real beef with my current LA, although they're not a pushover. So I'm a bit Confused as to how I feel except very tired.

I won't however have to live on the cusp of provision being removed, at least for a while. Hopefully that's a positive.

My battle scars are still itchy though and probably always will be.

There is much to do!

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StarlightMcKenzie · 22/08/2012 20:22

Hey Toppy! Grin

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justaboutiswarm · 22/08/2012 21:27

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Badvoc · 22/08/2012 22:08

So pleased for you xxxx

claw4 · 23/08/2012 12:36

A bit late with my congratulations, but better late than never!

Bloody well done, you/ds/family totally deserve it, must be such a relief and such exciting news x

StarlightMcKenzie · 23/08/2012 13:02

Oh and Toppy. The reason I was here, top of the list is because I LIVE here, - in your computer!!!!!!

Thanks Claw and Bad

Justa, I just found today that our new LA has contracted old LA's solicitor. That will do me nicely!!!!

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bialystockandbloom · 27/08/2012 19:59

Star I've been away for a couple of weeks, so only just seen this scanning through the threads.

Absolutely delighted for you Grin Grin and a tiny bit tearful too, especially when I saw what your ds had said too Smile

It is indeed a strange feeling not having any blinking tribunal stuff to do, no getting up in the morning, logging on and wading through research papers, past case histories, SEN law, Education Act, SENCoP etc etc over your morning coffee. You get to experience that bizarre and unfamiliar sensation of, um, what's that thing again - oh yes, freedom Grin

Enjoy enjoy enjoy. It is thoroughly and jolly well deserved Smile

pinkorkid · 27/08/2012 21:03

Another one who missed this exciting news - congratulations, you fought the good fight and won in the end.Grin