Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

CAMHS Update

6 replies

HecateHarshPants · 17/08/2012 11:31

Hi. Probably won't remember but I started a thread about my eldest and camhs referral. Thought I'd let you know how it went.

We went to the first appt and the guy straight out said he didn't have a clue how to help.

He presented camhs as a mental illness service not a mental health service and he is unsure how he can help my son as his difficulties are to do with him being autistic. My son is not mentally ill, but his mental health is being affected by his feelings and it has the potential to seriously affect him! He said he doesn't even know how to write the care plan in this case and he's going to seek advice on it.

He acknowledged there is a gap in NHS provision here and it's a disgrace, but there's nothing to be done.

He is going to see him 4 times, to talk about his autism and his feelings, he initially said to get him to "accept" his autism and we said hey hey, nooooo. Not accept. Understand, perhaps, but to accept it as it is right no is to limit him, to suggest there is no chance of developing skills further and we don't agree with that.

So, not too great. Seems to be well, he's autistic, what do you expect, no point trying to do anything, cos he can't change how he feels and acts, let's just work on getting him to feel that he's autistic and that's who he is.

Whereas I think that there should be help out there to help a child to understand themselves as far as they are able, and to learn skills that will help them function in the world. And to understand the rules. Even if they don't understand WHY people do the things they do, they can learn THAT they do them and that it's expected.

Not every child I know, but he can, with the right support and right way of explaining it all to him. That's all we wanted.

So feeling a bit meh about the whole thing.

In other news, I decided to not go to london with them this weekend so I am FREEEEEEEEEEEEEE!!! Grin

OP posts:
TheLightPassenger · 17/08/2012 15:30

well I suppose at least he was willing to admit his ignorance, but honestly, surely it would be more constructive to look at how to get your DS to someone who does know what they are doing with ASD/psychology/emotions, but I suppose that may take money and effort Hmm

enjoy the free weekend, anyway

TheLightPassenger · 17/08/2012 15:32

depressing tho to think how little value there seems to be in preventing future mh issues in young children at high risk Sad

bochead · 17/08/2012 16:28

Maudlsey London has a specific autism clinic - anyway you or the bod you saw can access their expertise? They do know what their apples & pears.

coff33pot · 17/08/2012 17:07

Agree look up on their SLAM website (south london and Maudsley Hospital, then look up ARD Services (Autism & Related Disorders) They are and were brilliant with DS and very experienced in the field. (they are also camhs but national and international)

There are courses you can go on at that hospital too which I was told I was welcome to attend but it is so far away. Even after dx they are easily accessible by phone.

coff33pot · 17/08/2012 18:03

Another suggestion is to look up any local Autism related groups. For instance my DS is on a waiting list for a place called dreadnought. They runs something called Aspires and Aspires Junior. The idea is a social setting to build on social awareness, social skills and team work the idea is at the end of the time they are able to go out and be involved in a social project they have been preparing for. They will also help with transfer to outside clubs etc.

Long waiting list but I would look around and see if there is something like that in your area or ask the NAS society and see if they have info or family information service at your local council?

HecateHarshPants · 17/08/2012 18:38

It is, isn't it, TLP?

No, we're in Derbyshire, bochead. There's bog all up here. It's just too far to travel.

There really isn't over much in the way of services here at all. Where I live there is nothing. There are a few things in nearby sheffield, but funding issues apparently mean it's only for people in sheffield Hmm, there's similar with chesterfield. Then there's the derbyshire autism support. based in derby and with nothing up this end.

We're in sort of a dead zone it seems.

I am considering talking to the local secondary school (which doubles as community college) and seeing if I can set something up myself. There's certainly a need. But I'm not quite sure how to go about something like that. Will need to investigate.

NAS has proved useless over the years Grin

ime, it's all been oh, yes, they're autistic. You seem to know what you're doing, we'll leave you to it. Toodles.

OP posts:
New posts on this thread. Refresh page