Hypermobile DD (3 years) feels no pain, what is painful for people with hypermobility?

[AnaIsAlwaysShocked]

DD has been diagnosed with hypermobility that may be a symptom of something else but due to her lack of understanding they are delaying any more assessment until she's older.

Another problem she has is a complete lack of pain response. She's 'in her own little world' but never cries, shows pain. Always very happy and cheery.

She can fall badly but still be smiling and just get up and walk of. She's totally confused by blood, to her it's just something that randomly happens, not because she's injured herself.

To give you an idea of how unaware she is of pain. The hospital can take bloods without cream and as long as she's looking the other way she's totally unaware of it happening.

But we have been told hypermobility causes pain so would like to know what is painful to we can prevent/limit it just incase she's feeling the pain but cant tell us.

Her behaviour changes sometimes so I'm trying to link that with possible pain. I don't think I'm making any sense but if I know what may be painful and look out for it plus the behavioural changes. Then we can see if medicating when she does certain things improves her behaviour and proves she feels pain but doesn't understand how to react.

I think my DD is hyper mobile (physiotherapy appointment on monday). She also has a very high pain threshold. Although interestingly since we put her on a gluten free and dairy free diet (she has suspected ASD) she says everything hurts.

Not actually sure if that helps you at all.

The hypermobility and undersensitivity to pain may be separate issues. DS2 is very hypermobile, but definitely feels every little thing, though his reaction is often delayed while he works out what the sensation is and what he wants to do about it! (then it's time to call the waaaaaaahmbulance!)

All except DH hypermobile. DS1- can be either really reactive to pain, or not at all. DS2 - the highest ever threshold for pain I've ever seen, DS3 - like DS1, me - very high threshold for pain.
My theory is that firstly, because of lax joints, the body is used to stretching further than should be normal - so what should be painful, isn't - like DS1 has been given really nasty chinese burns, but because of the mobility in his wrists, you would almost have to twist his arm off to go past his pain threshold.
Secondly, because we frequently over extend our joints - and can't tell that we have, most of us have residual pain as the norm. It then has to be REALLY painful to register.
Aside from that, I often think DS1 and 3 decide how much they want to milk the incident as to how much pain they are in. If it was due to their own stupidity - no pain. If they can get a brother into trouble, a make it better cake etc, then they're in agony! DS2 doesn't play that game. When he was in hospital last, the sister did comment that he was the healthiest and bounciest sick child she had seen in a long time - and could I keep him a little more under control as his leads kept coming off (HD unit!)