Hand holding please...

[Galena]

So we're off to Bristol today for an initial appointment/discussion about SDR for DD (3.4) She has cerebral palsy, but it's only mild and she walks unaided, albeit a bit wobbly and falls a lot. This operation could change her life - removing the muscle tightness, helping her to walk 'normally' and allowing her bones to grow straight.

But it wouldn't be funded on the NHS so we'd have to raise £40,000 and it involves on operation on one vertebra, and on the nerves where they join the spinal cord.

I don't want to ruin what she's got ability-wise, but I want the best for her.

Anyway, we're not leaving till 1ish, and I'd appreciate a little handholding and distraction until then, if it's not too much trouble...? Might put this in chat too... the more the merrier!

it's only natural to worry.

you are going to an appointment to find out possible future options for you dd.

whatever the end result of the conversation, there will be choices to be made - it's back to uncertainty for a bit.

I hope all goes well, and that you get the answers you want

Thanks - I just feel somewhat pathetic - I know there are people facing so much more... I'm a coper, so when I'm not coping I hate it!

I hope it all goes well for you.

you're not being pathetic!

I know what you mean wrt being a coper though - all I ever want to know is the end result - whatever it is I'll cope with it/plan around it, but the not knowing (or having two many options/what ifs to plan for) really gets to me.

not long now

Thanks - and tears over the wrong food processor is definitely not pathetic!

especially not when I've finally persuaded dh that we don't want another evil magimix, but do want a lovely kenwood chef

s'ok, have the right one on order from Amazon

hope your dh is back soon, so you can get it all underway...

He's just leaving work... And we have a lovely new Kenwood chef... :) It's very shiny and brilliant! Might make meringues tomorrow

@ usable kenwood chef

still, not long before amazon deliver, and then dh can have his 'proper' birthday cake!

Oh good luck Galena! dS is back in hospital for intensive physio but it really has made a huge difference to him. It's not a cure and because we went for the more conservative approach he still has some spasticity but the freedom and independence it's given him not yet four months down the line is amazing. It's bloody hard work though, for me and him!

It went really well - he feels she's stubborn determined enough for the operation and that, depending on the outcome of the multi-agency assessment, she would benefit.

Assessment will be around the end of the year and cost around £1000...

Woohoo - I think!

Oh good, that's a positive start! One step at at time!

silverfrog - DH got me this one from Lakeland for my birthday a few years ago... www.lakeland.co.uk/15922/Kenwood-Prospero ... absolutely love it!!

Galena - sounds like a positive appointment, so that's great!

Thats great Galena! I am glad it went well for you and was positive news :)

Thanks all :)