Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

SHOUTING!

12 replies

MsNobodyAgain · 15/08/2012 01:25

How do people cope? ASD DS2 has hyperacusis (very sensitive to loud noises). He is a nightmare of a sleeper hence whey I am awake now.

DS1 shouts constantly (he has learning difficulties, GDD and possible Aspergers). He shouts all the time. I want a mute button. I want the volume turned bloody down. His teachers thought he was deaf. He isn't. He is just LOUD!

I've tried time out with him and reward charts but he simply forgets and SHOUTS! He is a human fog horn. The Behavioural Therapist is coming to see us on Monday but in the meantime, any tips.

Desperate.

OP posts:
ArthurPewty · 15/08/2012 08:04

This reply has been deleted

Message withdrawn at poster's request.

TorchlightMcKenzie · 15/08/2012 08:06

Read Mr Noisy to him, then follow the story yourself!

Ilovecake1 · 15/08/2012 08:08

Hi, I know exactly where you are coming from!!!!! Although my little one sleeps ok.
When we are out and she is talking very loud I tend to say "little voice please" and in the house I tend to use traffic light system I think I bought them off eBay where it shows different colours for different volume of voice. It's a chart and also a small fob....I show the the indoor colour if we are in the house to remind her but in the garden/school yard I show her the outside colour and she can raise her voice as much as she wants. This has helped a lot but still needs a lot of reminding! Good luck.

MsNobodyAgain · 15/08/2012 08:25

Thank you so much for the replies. I am going to search for the traffic light system (but I don't 'get' E-bay though. I prefer Amazon).

I am just so sick of the constant reminders 'use your inside voice', 'not so loud' and then 2 minutes later he's loud again! It's a shame for him as he is always very sorry but can't seem to control it.

OP posts:
MsNobodyAgain · 15/08/2012 08:50

I've had a look on Amazon but I'm not finding anything suitable. Some rely on a written reminder and DS1 can't read yet.

Ilovecake1 do you have a link to the product you purchased?

OP posts:
Ilovecake1 · 15/08/2012 09:18

Sorry don't think it works...if you put "autism voice volume poster" into eBay it should come up.

auntevil · 15/08/2012 09:31

MsNobody do you tend to find that your DS1 puts too much force into doing activities as well? - things like pressing so hard on pencils that the lead breaks, nearly taking the door off when opening it?
I ask as my DS1 has dyspraxia and SPD. I've never known whether his booming voice (think Brian Blessed) and over enthusiasm is part dyspraxia and part SPD.
He says that he doesn't like silence, so has to make noise (sensory). Not knowing how much volume - no idea. But like your DS, the more excited, the louder and louder. At least we now have an action to signify lower the voice, so I don't have to be that near to him to make him reduce the volume.

MsNobodyAgain · 15/08/2012 10:10

Ilovecake1 I copied and pasted the link and I've ordered it. It looks perfect. He will understand the colour coding for sure. Thank you.

auntevil yes, he breaks pencils - he is just learning to write (he's 7), slams doors and is generally clumsy. He also won't eat with cutlery. He has a bowl of Shreddies every morning but he eats them with his hands. He always says "sowwy" (can't pronounce his r's). He seems to have compulsions he can't help and I want to do my best for him.

(Sorry but I laughed at the Brian Blessed reference because I can relate to it so much Grin)

I am pretty sure DS1 has dyspraxia and SPD, but the specialists are just leaving it under the GDD banner for now. Fair enough. He's in a SN school anyway, so why should they bother labelling his specific conditions Hmm.

That's me being sarcastic by the way, towards the doctors.

Anyway, thanks for the help everybody. It is just getting harder as my DCs get older.

OP posts:
auntevil · 15/08/2012 10:31

I would ask the question as to how long they are going to use the developmental delay tag as it is quite clear by the age of 7 what developmental milestones they are short in and that now you would like a reason for them.
I have left DS3 (5) and his fine motor skills issues as I am not sure that he is copying DS1 or not. Now he has done 1 year at school and they have mentioned it, it's time to pull my head up out of the sand and start asking.
Academically and socially, how is your DS doing? If milestones have been met in many areas, then it is not global and is specific, and they need to get up off their lazy self imposed pedestals get around to a full and proper dx

MsNobodyAgain · 15/08/2012 10:51

I know auntevil. I'm very very annoyed about this.

To answer your question, DS1 is behind in every area. Academically and socially. He is over friendly, no stranger danger, stands too close to people (but that gets blamed on his visual impairment). He has missed every milestone. He has had MRI scans, muscle biopsies, lumbar punctures, blood tests, etc. They just don't know what it is.

His non id twin is the same, but worse, he's like a big baby.

I am tending to think once they are in a SN school, the investigations stop. Bang...you're in the right place. Why bother looking for a diagnosis anymore?

I am very grateful they are in a SN school by the way. I am luckier than most that have to fight for funding and support in a mainstream. It just makes my blood boil sometimes. We have been signed off by the Neurologist - why? I can call on the Paediatrician if I have concerns! I have concerns every single bloody day.

It is exhausting. It's the school holidays and I am pissed off. Thankfully, the DCs are at their Grandmas now so I can roam the boards and post rubbish Smile

OP posts:
auntevil · 15/08/2012 11:08

I still think it's a lazy dx. But I'm on a bit of a witch hunt myself re dx for my DSs. I hate umbrella terms. All 3 DS have IBS - at times chronic. Drs saying that at such an early age that they can't work out why, it's something that they just have and have to live with, to me seems lazy. So I'm a woman on a mission.
I know what you mean by exhausting, I try to only fight 1 battle at a time!
Have a nice bit of time to yourself and re-charge Wine Brew Chocolate

New posts on this thread. Refresh page