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SN children

Here are some suggested organisations that offer expert advice on special needs.

hello to all

10 replies

definatlylosingmysanity · 14/08/2012 00:32

Hello i posted a small hello on chat and mentioned my ds2 and this board was suggested as a good place to be Smile . I'm soon(ish) to be mum to 5 and ds2 has a dx of ADHD and GDD hes recently been assessed for Autism we should hopefully hearing about that in next couple of weeks. Ds2 is 7 and can be a loving little boy sometimes he is too loving but we are working on personal space.

I first noticed something wasn't quite right when he was 6 months old he went from being a happy contented little boy who slept well to being a baby who would hardly sleep and would scream for hours. I took him regularly to see the gp but was always told there was nothing wrong and it was phase. When he turned 18 months old he started to become aggressive and toileting issues started where he would remove his nappy wipe what he had done on walls and other surfaces and as he started toilet training he would wee everywhere but the potty or toilet. At his development checks he was always deemed to be behind his peers but everyone said it wasn't a problem and it was all down to the fact i needed firmer boundaries. Since then i have been on numerous parenting courses including the Triple P course.

Three years ago i finally got a gp to listen and was referred to the local hospitals CDC it was a few months after we received the GDD dx at the time ds to just turned 4 and was working at a 3 year old level, and it was last year we finally got a referral to CAMHS.  Since then its been very stop and start with us getting lost in the system on more then one occasion which leaded to basically sits in in the gp surgeries and constant phone calls.

He however still has issues with danger awareness, has trouble with high buildings and certain loud noises and he often gets frustrated to the point where he physically lashes out. He's in ms school and has been statemented and has 1 to 1 support for 20 hrs a week SALT which he has appointments for once a month but daily work is done at home and school. He is often referred to as "that child" mainly by adults most of the kids don't seem to have a problem with him. He starts his ADHD meds in the morning which if i'm honest is a bit scary but if it helps him it can only be a good thing Smile .

 My dd is 3 and adores ds2 to the point she copies nearly everything he does and the 2 of them together have created quite a few incidents ranging from redecorating to complete floods from upstairs all the way to my living room. Ds2 has a thing for water and bubbles and dd loves anything ds2 loves it can be quite sweet if not a bit challenging at times especially when they team up against me. Ds1 and ds3 are very typical boys of 9 and 2, ds 1 is very protective of his siblings especially ds2 which is because of some comments we have received off people when he's having a moment and has been known to ask people not to stare while mum is dealing with ds2 as it upsets ds2 more. 

i'm sorry i didn't mean for this to be such an essay i guess i'm just soused to having to explain everything to people its become a habit [smile.

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Cathycat · 14/08/2012 00:52

Hi, yes your experience reminds me a lot of mine. My 2nd child out of 4 has autism. The eldest has a complex relationship with him - closest, most understanding but also most critical. His younger sibling is a "good girl" who loses out (I feel) but she copes well, not entirely understanding yet. The youngest adores my 2nd child, copying lots, not at all understanding the inappropriateness of it all! He shows off and attention seeks often mid - crisis! Love how you mention the protective element - "Mum, if one more person mentions you've got your hands full!" They often end up forgetting they're a child!

mymatemax · 14/08/2012 00:54

Hello & welcome, you sound like a very busy lady. everyone is very friendly here & there is always someone that has an answer to even the strangest of questions.
I have 2 boys, ds2 has mild cerebral palsy, autism, learning difficulties & a few other odd bits thrown in, all down to his prematurity.

definatlylosingmysanity · 14/08/2012 01:04

Hi Cathycat yes that's been a worry of mine ds1 is the same at school, i'm not sure if it was the right thing but i have spoken to ds1 and explain while i'm proud he sticks up for his brother and obviously cares so much is there is a line between being a big brother and trying to act as another adult it sounds horrible but because i can't allow ds2 out to play on the front (its a cul-de-sac at just off a small street) as he would just run off where ever and not watch roads, i encourage ds1 to go out as much as often and the others play in the garden .

Hi and thank you mymatemax yes it can be hectic but way i see it it keeps me out of the gym and to be honest gyms with all the machines are more scary then dealing with anything my little lot can throw at me Smile.

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MrsShrek3 · 14/08/2012 01:37

good to see you over here Wink

definatlylosingmysanity · 14/08/2012 01:39

thank you MrsShrek3 Grin

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MrsShrek3 · 14/08/2012 01:51

pm'd you :)

definatlylosingmysanity · 14/08/2012 02:19

thank you i have replied {smile]

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auntevil · 14/08/2012 11:13

Hello definatlylosingmysanity - love the name. Hope it doesn't change to definatlylostmysanity when no.5 arrives - is it imminent?
Had to laugh about the tag team of DS2 and DD - and the chaos they must cause. It was an empathetic laugh btw - I have 3 DS and know all too well how they egg each other on to disaster Grin
All 3 have mild medical issues, but DS1 also has dyspraxia, SPD and hypermobility. I was also asked to get a referral for DS3 re some dyspraxia like tendencies, from school at the end of his first year.

insanityscratching · 14/08/2012 13:22

Hello and welcome, my ds (third one) is 17 and has autism and dd (second) is 9 and has autism too. They are the best of friends and gang up on the others and woe betide if you upset one because the other will defend them to the hilt. It's lovely to see them together as you can see the love between them.

definatlylosingmysanity · 14/08/2012 21:07

Hi auntevil Smile thank you i'm hoping it wont dc5 isnt due until march unless they do ds3's trick of coming early and don't worry about laughing i do it often my motto is it's better to laugh then cry and tbh sometimes i just have to laugh about how imaginative they are at times when it comes to mischief.

Hi insanityscratching Smile and thank you. All the dc's "pretend" not to like each other at times but are protective if anyone elses start ds1 has been listening to too many stories about mum and her siblings and now uses the "its my birthright to fight with them no one elses" Hmm i blame dm as im sure i wasn't as bad as she makes out Grin

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